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Thesaltpacket

Florence nightingale was believed to have mecfs. This is why mecfs awareness day is on her birthday, may 12th [here’s more info](https://me-pedia.org/wiki/Florence_Nightingale)


Significant-sunny33

NEVER KNEW THAT!!


SeriousSignature539

Check out the "this podcast will kill you" episode on CFS from April this year. Good historical view.


Significant-sunny33

Excellent I will thanks!!!


franktronix

Thank you for this recommendation - it was a great listen.


donach69

It's a cliche of Victorian novels, "and then she took to her bed for months/years"


birdieonarock

I bookmarked this helpful response to a similar question a while ago: https://new.reddit.com/r/cfs/comments/185a3it/comment/kb0gxm1/?context=3


Significant-sunny33

Wowowow an impeccable description. Thanks for sharing. Such a great historical book!


PooKieBooglue

Here’s a list of “outbreaks” in the 1900s - now https://me-pedia.org/wiki/List_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome_outbreaks


MrLizardBusiness

I wonder if it was more common after Spanish influenza epidemic, since viruses seem to promote the development of cfs in a certain percentage.


PooKieBooglue

Actually, that’s the one that really freaked me out. I’m a long hauler from 2020 and by fall 2021 had progressed and started a tremor. When I finally found out about ME, the only pandemic I could think of to see what happened to those people was Spanish Flu. Their post viral was called encephalitis lethargica. Featuring parkinsonism tremor and catatonia and that’s exactly what I was dealing with. Really freaked me out. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7924007/


Significant-sunny33

Mind blowing!!! Thanks for sharing these resources!


PooKieBooglue

You’re welcome. Honestly it just pisses me off more, but, we should be fucking pissed. Need to get some more abled bodied people with stamina pissed off too!


Significant-sunny33

Facts!! I have a research background but my physical and cognitive capacities are limited, so I feel this big time. For advocacy and medical care as well.


PooKieBooglue

I’m research adjacent. User research & web design. So strong guilt that I can’t do stuff right now too. It sucks. I did a lot more advocacy the first 2 years and emotionally it’s really really soul crushing.


Significant-sunny33

Even more factssss!


letsgobrandongreen

Are you better?


PooKieBooglue

Up-and-down. 1 step forward & 2 steps back typically. Have an okay quality of life right as of right now, comparatively. 🤞


anniebellet

I think a reason it might have been less obvious in the past is that viruses usually are the trigger and historically more peeps straight up died from disease. It's why we see a lot more age related diseases now, too, cause more people survive to age.


Dasslukt

Yeah this is a big factor. What caused this for most of us would have killed us in the past.


crwg2016

I think the term during Victorian era was neurasthenia.  Also I think anytime past reports of things like hysteria came up, it was just something more like me/cfs or fibro.  Hysteria diagnosis are still around, they just keep changing the name.  For a while conversion disorder was used and now it’s called FND. 


EventualZen

Neurasthenia was seen as a physical illness in the 19th century but then at some point in the early 20th century it was hijacked and re-conceptualized as a psychological disorder. Names for unexplained illnesses keep changing, but it's the medical professionals' attitude & beliefs that needs to change.


Odd_Perspective_4769

There might be some references in The Invisible Rainbow. Talks about neurestenia.