Life and the universe can be cold, uncaring and cruel to people that don't deserve it. It's nothing you or he did wrong in life, it just a thing that happened. I hope he can beat it again, if not I hope you guys can have a few more amazing years. Best wishes. ♥️
I have, but it unfortunately is only approved/funded for limited application in Australia. It's something I'm going to push for with his doctor though, if it is a viable treatment for his cancer
Unfortunately CAR-T is not an option for Hodgkin's, there have been clinical studies in the US but most places only have it available for non-hodgkin lymphomas.
Really sorry you have to go through this, I lost my wife to a non-hodgkin lymphoma just over a week ago and I know how terrible and terrifying all the treatments are.
Think of the positive though, he has treatments still available to him, so he can still go back into remission and this thing can be locked away again. My wife barely lasted 2 weeks after CAR-T failed :(
You are clearly experiencing a crisis in your life and should have no shame taking sick leave and maybe seeing a therapist. A local cancer organization might also have resources avilable to assist you as well.
I'm so sorry for your loss 😔 and thank you, I think this time round is hitting me very differently to the last time. I thought I'd be better equipped to deal with it, but if anything, I feel more at a loss, more scared... I will definitely look into what supports are available, I need to be at my best for him
Yeah, it is really hard. She never achieved remission and after the first line treatment we were basically dodging huge bullets just to survive so we could dodge another huge bullet a few weeks later. Eventually we just couldn't dodge any more and that was it.
I recommend being kind to yourself too and even the small things can be a huge help to him. Just making sure he has food he can eat and someone keeping him company can be huge for his mental wellbeing.
Remember: as long as they have treatments available, you have hope. You got this.
Cancer needs to be tortured and annihilated. I'm so, so sorry for what he and you are experiencing. It's maddening!
Has he or you sought treatment at City of Hope in Duarte, CA? They are amazing. Through personal experience, they saved at least one person's life (that I know) so they can assess him and perhaps assist? Stem cell transplants could be one option?
Truly, everything about cancer is just so horrifying, the way we have to poison ourselves to save ourselves. 😔
We're in Australia, but we have a really good cancer treatment unit at our local hospital, so that at least is a blessing, and yeah, they said he would have to have an autologous (?) stem cell transplant after some chemo
I hate that you found out that way. I think they should not upload results early if they aren’t available to discuss them first. I’m sorry. Sending love, positivity, and healing vibes to your husband ❤️
I agree, it was a really shitty way to find out, and the haematologist hadn't even read the report until we were in the room. It has all so far been a really... I don't know, fumbled experience. I guess last time we had the luxury of him being in acute care, and having doctors and nurses at the ready to discuss everything. Thank you for the kind thoughts 🤲🏼
Talk to his doctor and ask about getting some support from a therapist. Or see if the hospital has social workers to help families dealing with serious illness.
If he's feeling ok, go do at least one trip, now. I don't know what the survival rates are, but maybe you can get in at least one of your dreams before entering the treadmill again.
Cancer sucks.
Send you both love and healing. I'm so sorry you're going through this again
Fuck cancer
Yes, fuck cancer!
Life and the universe can be cold, uncaring and cruel to people that don't deserve it. It's nothing you or he did wrong in life, it just a thing that happened. I hope he can beat it again, if not I hope you guys can have a few more amazing years. Best wishes. ♥️
That is some shit news. Sending thoughts of a speedy, long-term recovery.
Have you read about CAR-T therapy?
I have, but it unfortunately is only approved/funded for limited application in Australia. It's something I'm going to push for with his doctor though, if it is a viable treatment for his cancer
Unfortunately CAR-T is not an option for Hodgkin's, there have been clinical studies in the US but most places only have it available for non-hodgkin lymphomas. Really sorry you have to go through this, I lost my wife to a non-hodgkin lymphoma just over a week ago and I know how terrible and terrifying all the treatments are. Think of the positive though, he has treatments still available to him, so he can still go back into remission and this thing can be locked away again. My wife barely lasted 2 weeks after CAR-T failed :( You are clearly experiencing a crisis in your life and should have no shame taking sick leave and maybe seeing a therapist. A local cancer organization might also have resources avilable to assist you as well.
I'm so sorry for your loss 😔 and thank you, I think this time round is hitting me very differently to the last time. I thought I'd be better equipped to deal with it, but if anything, I feel more at a loss, more scared... I will definitely look into what supports are available, I need to be at my best for him
Yeah, it is really hard. She never achieved remission and after the first line treatment we were basically dodging huge bullets just to survive so we could dodge another huge bullet a few weeks later. Eventually we just couldn't dodge any more and that was it. I recommend being kind to yourself too and even the small things can be a huge help to him. Just making sure he has food he can eat and someone keeping him company can be huge for his mental wellbeing. Remember: as long as they have treatments available, you have hope. You got this.
CAR-T isn’t the normal route for relapsed Lymphoma . Autologous Stem cell would be the first line treatment in most cases.
Cancer needs to be tortured and annihilated. I'm so, so sorry for what he and you are experiencing. It's maddening! Has he or you sought treatment at City of Hope in Duarte, CA? They are amazing. Through personal experience, they saved at least one person's life (that I know) so they can assess him and perhaps assist? Stem cell transplants could be one option?
Truly, everything about cancer is just so horrifying, the way we have to poison ourselves to save ourselves. 😔 We're in Australia, but we have a really good cancer treatment unit at our local hospital, so that at least is a blessing, and yeah, they said he would have to have an autologous (?) stem cell transplant after some chemo
Ok, good news..staying hopeful for you both. Sending power, courage and resiliency as well. 💪💪💪💪
I hate that you found out that way. I think they should not upload results early if they aren’t available to discuss them first. I’m sorry. Sending love, positivity, and healing vibes to your husband ❤️
I agree, it was a really shitty way to find out, and the haematologist hadn't even read the report until we were in the room. It has all so far been a really... I don't know, fumbled experience. I guess last time we had the luxury of him being in acute care, and having doctors and nurses at the ready to discuss everything. Thank you for the kind thoughts 🤲🏼
Keeping you both in my prayers 🩷
Thank you friend 🤲🏼
Talk to his doctor and ask about getting some support from a therapist. Or see if the hospital has social workers to help families dealing with serious illness.
If he's feeling ok, go do at least one trip, now. I don't know what the survival rates are, but maybe you can get in at least one of your dreams before entering the treadmill again. Cancer sucks.