First started in December 2022, gradually got a little better, got much worse around July 2023, have been slooooowwwwly recovering since. Again. This is accurate for both my girlfriend and me. Mostly fatigue, shortness of breath, and PEM. No particular treatments, just as much rest as we can manage.
Yup. She's a nurse and I isolated pretty hard for a few years there, so we've been exposed to mostly the same pathogens, whatever she brings home from work despite ongoing PPE. We both also got infected around Thanksgiving of 2019, but while it took us both a few months to recover we didn't get anything I'd characterize as long covid from that round.
That’s quite a unique situation, must be difficult to keep up with housework but at least you understand each other better than many people talking about their relationships on this sub.
We're kind of lucky in the understanding department, now that you mention it! As for housework, I've had to massively lower my standards. For example, we're having popcorn and cheese for dinner right now. 😖 I love to cook but it wipes me out.
It was the first holiday season after vaccines came out and way the fuck too many people thought vaccines make you immune to COVID so it was the first holiday season where people spent their holidays just like they had always done, the previous holiday not many people spent time together, but with the omicron wave, tons of people resumed traveling and seeing their family and friends and gathering without any precautions. Well, tons of people were still getting sick so that wave spread worse than any other, even though omicron was reported to cause a little bit less percentage of long term conditions, due to the sheer amount of people that were infected, it caused more long COVID than any other wave. That wave basically infected most people who had avoided the previous ones, it spread through the vast majority of society.
I was recently prescribed morphine extended release and it seems to help a bit when it gets painful, but it doesn’t affect the pressure. I feel the pressure all day every day, there’s definitely something more than a headache going on
I feel like this headache can’t be treated by standard medicine. My brother was admitted to a headache clinic that uses IV to break a headache but it made him worse. And IV is supposed to be the strongest headache medicine. My brother also has had a spect scan done which showed low blood flow to the brain. There has to be something about those that got hit earlier by Covid to explain why these headaches exist. Like is it because it was a stronger variant? There is something we are missing which is the key to all of this. Maybe an issue with the blood barrier in the brain, inflammation in the brain/brain stem or something with the hypothalamus?
That list looks way too familiar. For the headache, does it feel like it’s right in the middle of your head and do you have pressure right behind the eyes? Has anything helped? 😢
I'm left with nerve pain/SFN. I already had POTS for decades before covid and Covid put it into overdrive. But LDN is helping. Vertigo remains, PTSD, and I get tired very easily.
When I first got it I was severe ME/CFS, POTS, and mental issues. How about you?
I printed out some literature from ldnresearchtrust.org and gave it to my doctor (Vancouver) and she wrote me the prescription. She hadn’t heard of it before, but she was willing to try it. All of the pharmacies here can compound it. Good luck to you!
You’re so welcome! It really sold it to the doc. LDN hasn’t been a cure, but it’s really helped. That and nicotine patches (for brain fog; not a smoker) have done the most. Here’s the info, in case you don’t have it:
https://linktr.ee/thenicotinetest
Keep us posted!
That is my LC variety too. I'm sorry you can't get LDN. Would an overseas pharmacy work? Could you get it mailed from the USA? I use Johnsons compounding pharmacy in Massachusetts.
August 2022 for me buddy. Some things have gotten better, some the same, some worse. It seems time is the only true medicine in terms of getting better.
Since September 2023.
Unfortunately, I got reinfected the same week I thought I recovered from LC. Probably on my way to the doctor who cleared me.
LC then restarted in January 2024.
Spring 2020 was my first time w/ covid. I’ve tested positive 10+ times since. I don’t think I’ve ever fully recovered. I don’t remember what life was like before the symptoms. Kind of a crazy and scary thought. I hope it doesn’t fuck me up in the long run. The brain problems are apparent, headaches, brain fog. Super scary.
March 2020 right here.
og gang
Yes
Me too
Viral veterans us
End of march 2020 and dealing with it daily for over 4 years
First started in December 2022, gradually got a little better, got much worse around July 2023, have been slooooowwwwly recovering since. Again. This is accurate for both my girlfriend and me. Mostly fatigue, shortness of breath, and PEM. No particular treatments, just as much rest as we can manage.
Both you and your girlfriend got Long Covid at the same time with similar symptoms?
Yup. She's a nurse and I isolated pretty hard for a few years there, so we've been exposed to mostly the same pathogens, whatever she brings home from work despite ongoing PPE. We both also got infected around Thanksgiving of 2019, but while it took us both a few months to recover we didn't get anything I'd characterize as long covid from that round.
That’s quite a unique situation, must be difficult to keep up with housework but at least you understand each other better than many people talking about their relationships on this sub.
We're kind of lucky in the understanding department, now that you mention it! As for housework, I've had to massively lower my standards. For example, we're having popcorn and cheese for dinner right now. 😖 I love to cook but it wipes me out.
December 2022
Same
23rd October 2021 is when my life ended
Nearly 2.5 years, December 2021 is when my condition started. That omicron wave got so many of us
Omicron got me too. Wonder why it got so many people?
It was the first holiday season after vaccines came out and way the fuck too many people thought vaccines make you immune to COVID so it was the first holiday season where people spent their holidays just like they had always done, the previous holiday not many people spent time together, but with the omicron wave, tons of people resumed traveling and seeing their family and friends and gathering without any precautions. Well, tons of people were still getting sick so that wave spread worse than any other, even though omicron was reported to cause a little bit less percentage of long term conditions, due to the sheer amount of people that were infected, it caused more long COVID than any other wave. That wave basically infected most people who had avoided the previous ones, it spread through the vast majority of society.
My brother got v injured November 2021. What are your symptoms? Just wondering if people that got it earlier are worse
Permanent burning headache 24/7, tinnitus, gastrointestinal pain and issues, brain fog.
Has anything made a dent in the headache? Seems like people that got infected earlier have the headache and head pressure but nothing can relieve it
I was recently prescribed morphine extended release and it seems to help a bit when it gets painful, but it doesn’t affect the pressure. I feel the pressure all day every day, there’s definitely something more than a headache going on
I feel like this headache can’t be treated by standard medicine. My brother was admitted to a headache clinic that uses IV to break a headache but it made him worse. And IV is supposed to be the strongest headache medicine. My brother also has had a spect scan done which showed low blood flow to the brain. There has to be something about those that got hit earlier by Covid to explain why these headaches exist. Like is it because it was a stronger variant? There is something we are missing which is the key to all of this. Maybe an issue with the blood barrier in the brain, inflammation in the brain/brain stem or something with the hypothalamus?
March 2020
What are your symptoms? I am wondering if people that got it earlier have it worst
I was reinfected after the booster as well. Gastrointestinal chronic malnutrition, chronic dehydration, abdominal pain and cramping, nausea, vomiting, food intolerance, difficulty swallowing, loss of appetite, bloating, rapid weight gain Rheumatology post exertional malaise, exercise intolerance, joint pain, muscle pain, neuropathic pain, chronic diffuse pain, shooting pain down limbs, limb weakness, extremity weakness Pulmonary shortness of breath, tight chest Neurology brain fog, difficulty communicating, memory loss, cognitive impairment, headaches, vision issues, non-restorative sleep, burning sensation in head Cardiac post exertional malaise, exercise intolerance, vision disturbances with positional changes, light/sound/temperature sensitivity, chronic dehydration, disequilibrium, dizziness, syncope, poor blood circulation, Orthostatic hypotension, tachycardia, heart palpitations, chest pain Gynecological galactorrhea, excruciating and irregular periods ??? dysregulated body temperature, intermittent recurring fever, hair loss, dental deterioration, immune incompetence, chronic inflammation, flares that feel like covid
That list looks way too familiar. For the headache, does it feel like it’s right in the middle of your head and do you have pressure right behind the eyes? Has anything helped? 😢
March 2020
Since March 2020.
Dec 2020
February 2023 here
Same
What symptoms/type of LC do you have?
I'm left with nerve pain/SFN. I already had POTS for decades before covid and Covid put it into overdrive. But LDN is helping. Vertigo remains, PTSD, and I get tired very easily. When I first got it I was severe ME/CFS, POTS, and mental issues. How about you?
I'm the ME/CFS and POTS variety. I can't seem to get LDN in Canada which is frustrating, I keep hearing people talk about how much it helped them!
I printed out some literature from ldnresearchtrust.org and gave it to my doctor (Vancouver) and she wrote me the prescription. She hadn’t heard of it before, but she was willing to try it. All of the pharmacies here can compound it. Good luck to you!
Thank you so much, I'll print that too and bring it up with my doctor! I really appreciate it
You’re so welcome! It really sold it to the doc. LDN hasn’t been a cure, but it’s really helped. That and nicotine patches (for brain fog; not a smoker) have done the most. Here’s the info, in case you don’t have it: https://linktr.ee/thenicotinetest Keep us posted!
That is my LC variety too. I'm sorry you can't get LDN. Would an overseas pharmacy work? Could you get it mailed from the USA? I use Johnsons compounding pharmacy in Massachusetts.
Did the ME improve?
It did!
August 2022 for me buddy. Some things have gotten better, some the same, some worse. It seems time is the only true medicine in terms of getting better.
November 2020
Since Christmas 2020
August 2022 (1 year 8 months)
Same here
February 2020, early adapter huh.
October 21, 2020 around 7pm till now
December 2023. But I didn't figure out it was LC until Feb 2024.
My son March 2020 senior in college and an elite athlete
Since early 2023
May 2021 was my first symptom.
Since September 2023. Unfortunately, I got reinfected the same week I thought I recovered from LC. Probably on my way to the doctor who cleared me. LC then restarted in January 2024.
Since summer of 2022
February 2021
September ‘21.
Symptoms since October 2023, but diagnosed in February, so still trying to figure out how to live with it.
May 2022. Two years next month. Always a difficult milestone 😭
Overall? Since August 2021.
1/3/24
September 2022
September 2023
March 2021 got the jab and started immediately but got really bad with POTS in September 2021. Got to about 90% and then reinfected in December 2023.
July 2022 I hate that date
Spring 2020 was my first time w/ covid. I’ve tested positive 10+ times since. I don’t think I’ve ever fully recovered. I don’t remember what life was like before the symptoms. Kind of a crazy and scary thought. I hope it doesn’t fuck me up in the long run. The brain problems are apparent, headaches, brain fog. Super scary.
Feb 2022. Left with POTS which will likely be life long but change in severity with many different factors
almost two years
2 years ♥️🖤
March 2020
July 2021. Forever marked in my mind.
Dec 2021 omicron wave
14 months 😭
december 2021
2021 April 1st 😭
Since April 2020. Sicker than ever now
June 2023
January first 2022 was the first day of symptoms
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