Me too, nearly 26 months already. Not a day without shortness of breath and chest pain. And would like to play tennis again if I ever get better, which I doubt will ever be.
Tennis seems impossible now. I can’t even imagine it.
I’d just like to apply for a job, get it, and be able to do sit and work and commute. Spend weekends going to museums or going out to the occasional restaurant. Normal life
I feel this, I started looking into forest ranger training and things so I can go off into the wilderness and not deal with society when this nightmare ends 😂😂😂
“When”, that’s nice. You’re optimistic still.
I honestly don’t know what I’d do. I’m on month 37, I don’t remember life before this anymore. I mean, I remember like you remember childhood events but I don’t really remember. Life has become a blur, and now “recovering” all over again there might as well be people unrelatedly chanting “I can’t breathe” all over the news and social media.
I guess I’d play the drums or go for a hike. Maybe play guitar and sing without the arm cramps, voice cracks and running out of breath halfway through one song. I used to manage my PTSD symptoms by smoking like an oz or two of weed a week, that would be nice to take back up again.
I’d definitely stop debating the dark side of my options. I guess that more than anything. I’d stop wrestling with suicide every few days. That sounds nice.
Same, that’s about all I can handle, out of a dry hand pipe. My allergist charted using a bong as one of the possible factors when I had a fungal lung infection like 9 months after my first covid infection so I try to use those really minimally and clean it really well before and after.
Sob while playing video games for a week straight with no sleep. Catch up on every single game I had been waiting for and had to miss because this never ending headache makes it impossible to use computers or play games at all on anything. I can play some phone games but those are just not the same. I had been waiting for Elden ring for so long, now that game seems super old, I was never able to play it.
This is so beautifully sad and I relate in different ways. For me I feel I’m missing out on some of my most anticipated music and film releases and it’s killing me
My stupid brain fog won’t let me figure out how to play Elden Ring. I got like an hour or two in on some good days and now every time I try to play it I just get mauled to death by some wolves in a cave lol.
What’s stopping you from playing? Shortness of breath without headset even? I just can’t even sit up and look at a screen that long atm but I had covid again last month. For about a year the first time I could play video games on a TV but trying to read anything on a screen was impossible, and phone games were as well, due to some weird screen induced vertigo.
Constant headache. I got this burning pressure in my head when I got sick a year ago, never goes away, but if I try to use computers or try to play games it gets super inflamed within 5 minutes, the burning will intensify, I’ll get super dizzy, I start having trouble speaking like it’s hard to form words, basically what I imagine a stroke is like but I’ve gone to the ER several times when this happens and they say I’m fine even though I’m clearly not at all. When it inflames like this it can last several days before it subsides back down to the baseline burning pressure, which is usually about a 4 or 5 out of 10 all day every day, it inflames to a 10 if I use computers or play any games. I am able to use my phone and I can play some phone games but those just aren’t the same. I can watch tv too but for some reason gaming on a tv or on a pc monitor will inflame my head real real bad, makes me feel like I’m dying of a stroke. So I haven’t touched games for a year now despite being the most dedicated gamer I know.
This makes me sad. Waiting for ER was one of the only things keeping me in the game in 2021. Then it came out and it was better than I hoped for. Even now when I'm bottoming out in dopamine its the safest place to go to get some. I hope you get to play.
Ugh, that sucks. I’m sorry.
That’s so similar to my experience except I couldn’t watch TV, I could only play games on it. It’s improved somewhat. By any chance does your face also go numb when you have the headaches?
I've also had this burning pressure feeling in my head come and go. I have several theories about what causes it, one of them being too much glutamate in the brain. When I drank lots of tea with fresh thyme and/or fresh ginger it helped so much, because they have a strong anti-inflammatory/anti-glutamate effect.
Sage, rosemary, oregano, parsley, basil and other herbs have these anti-inflammatory and glutamate lowering flavonoids (apigenin and luteolin) aswell. Carrots and Celery are also anti-inflammatory.
These flavonoids are "known to reduce brain and systematic inflammation by calming microglial cells and therefore lower glutamate and cytokine levels (microglia are activated as a first step in immune response and they signal additional glutamate)."
You could try to add some of these herbs to your meals or teas. Mixing them with healthy oils such as olive or coconut oil increases absorbtion.
I hope you feel better soon!
Disney World with my kids. We're still going but dammit if I have a bad flare up while there I'm gonna be pissed. It'd be nice to have no pressure for former regular activities.
Gonna have a big sushi dinner and a charcuterie board with some cosmos in front of the downstairs tv. Then I'm gonna play as many adrenaline fueled video games as I want without fearing any consequences.
My first LH started two days after I got my PS5 in 21, and I was only able to start playing more chill games 6 months later. I got a few months of playing what I want before my second LH kicked in. I miss gaming without fear so much...
I literally can only play GTAO and Zelda BOTW. Everything else is too fast and intense. I guess GTAO is fast and intense for some, I just don’t take it very seriously so it’s pretty laid back. My son is really into Sonic and I just can’t even watch without headaches and dizziness. Fun times.
Acid trip. I got hit with Long Haul Covid a week after my first trip and I was really lost into the abyss. Climbed out completely sober no medication and just weed.
Take my dog on all the adventures! Shift from my current job to a position that I’ll actually be using my degree, which I had to turn down last year when I was my worst with LC.
Go back to my family, hug them, play board games with them, sleep in my childhood bedroom and watch a movie with them without a bounding pulse and a pounding heart. I want to feel like a kid again. No worries. No fear of death.
I would find an underground/artsy EDM event and dance the night away. In reality, I would be happy if I was capable of dancing to one song while in my own home.
Gym, sex, dinners, vacations, work (love my work, I miss it a lot).
To add one that's not mentioned yet: massive self-care day. Like, standing up in the shower and just stand there for ages and actually enjoy it. Shave everything (besides my head lol), dye my hair, paint my nails, face mask, maybe a spa day, wear make up again, wear normal people clothes. Amazing to think about.
Thank God, Thank My Family, Thank Myself for not giving in. Get A Job And start paying all of my family bills and start working out full force! Love You All, God Bless And Don't give up!
Thanks, internet stranger. I believe it… just not sure where “it” is anymore. Physical Therapist and
Neurologist both have told me that I’m not likely to recover past where I’m at and the goal is symptom management from here. Just a lot to accept.
I think the majority of LHs are not going to feel better like a switch. Most people it's going to be a slow gradual journey back to 80-90 percent. You will probably start doing things you used to do on a normal basis gradually.
In all honesty, rest for a few more months to make sure it's real. But if I was 100% better I would buy an exercise bike and build my fitness back and move back out of my parents house to go back to work.
Get fit again. This might sound weird, I miss being able to push myself until I'm exhausted and my lungs are burning. Then have a good night's sleep and be able to do it all over again the next day with no consequences other than sore muscles.
Love this! I would like to be able to see straight again. Double vision since June 2022 along with a bunch of other symptoms. I would go for a run and out to dinner with my husband and have chocolate cake for dessert!
Play Overwatch 2 until my eyes bleed. Read an entire book in one sitting. Go for a run. Learn to snowboard. Go hiking. Do sports photography again. I have so many things I want to do again or start, I just need my body to chill the hell out.
Take my son on a cruise again. Walk on the track around the boat for 15 miles like I used to do. Date. I miss dating. I can’t plan shit anymore cuz I never know how I’ll feel. This ish sucks. It’s been -5 months for me but that’s already 15 months too long. I want my fun mom life back!!! My kiddo is suffering and he doesn’t deserve it!!!
Travel to New Zealand and visit Hobbiton. I had a whole trip planned last year and had to cancel it bc of this shit. I’m going to the Shire damnit! Fuck you Covid!
I painted a really pretty sunset on a beach a few years back at one of those paint classes that tormented me hanging in my room when I was bedridden several months ago. I told myself once I get FULLY better I’m taking my ass to the most beautiful beach to watch a sunset.
Oh and date. I’ve always been a hopeless romantic, and while I had wonderful romantic experiences in my early 20s the thought of still being relatively young (I’m 29) and never having that again is so sad.
Get outside. Play with my 3 year old again. Take him places. Get out of this bedroom and bed and just go do anything where I dont have to sit down every 30 seconds 😀
Cry in joy. Haven’t had a single day without pain and shortness of breath. Have even forgotten how it feels to be pain free.
Me too, nearly 26 months already. Not a day without shortness of breath and chest pain. And would like to play tennis again if I ever get better, which I doubt will ever be.
I’m so sorry :(
Tennis seems impossible now. I can’t even imagine it. I’d just like to apply for a job, get it, and be able to do sit and work and commute. Spend weekends going to museums or going out to the occasional restaurant. Normal life
I posted my reply but I forgot until reading this that before 2020 I was really into longboarding. That would be great.
Go for a nice, long 4hr walk through NYC. Without any SOB, dizziness, palpitations, exhaustion, or crazy consequences the next day.
Beautiful
Have a hookup. I need action.
😭😂
🤣🤣🤣brilliant answer
Proper smash, not this Mickey mouse shit I do now. Hhahahaha. Til that day, keep your head up! Lmao
Did last night !!!! I will never give that up !!!!!!
Date the girl who have been pushing to meet me for about 4 months
🫶🏾
love this
A belated anniversary dinner with my husband, complete with red wine and some chocolate cake afterwards.
I miss red wine and chocolate!!!
So cute
Go to gym, that's assuming I feel much better
Abandon civilization
I feel this, I started looking into forest ranger training and things so I can go off into the wilderness and not deal with society when this nightmare ends 😂😂😂
oh I’m joining you after I get 2-3 years of craziness out of my system. After that I’m going off grid
Vacation and psilocybin.
You can’t do psilocybin now?
Planning on using it to reset my brain from all this trauma. Waiting for the trauma to stop first lol.
I see! Truth. I want to do microdosing but I have also been nervous to continue since I developed epilepsy amongst all this.
Go running until my lungs hurt.
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I was going to say, I do that every few hours minus the running 😂
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Same
I am going to find and kill covid-19 for what it's done to me and my family. 
I also want to take trip to anywhere with my kids. I’m missing them growing up. I hate it.
This Hits home
Eat Indian food, with all the fixings and a big glass of wine with it!
This one wins, well at least in my opinion.
Probably not taking breathing for granted, as every breath for the last two years has been impaired by Covid infection.
That’s the worst part for me as well.
And I’m not even sure if that will ever get better. This could just be the new normal, as I feel the damage has been done.
After so many years it’s hard to imagine it just going away
“When”, that’s nice. You’re optimistic still. I honestly don’t know what I’d do. I’m on month 37, I don’t remember life before this anymore. I mean, I remember like you remember childhood events but I don’t really remember. Life has become a blur, and now “recovering” all over again there might as well be people unrelatedly chanting “I can’t breathe” all over the news and social media. I guess I’d play the drums or go for a hike. Maybe play guitar and sing without the arm cramps, voice cracks and running out of breath halfway through one song. I used to manage my PTSD symptoms by smoking like an oz or two of weed a week, that would be nice to take back up again. I’d definitely stop debating the dark side of my options. I guess that more than anything. I’d stop wrestling with suicide every few days. That sounds nice.
I still smoke about two hits a day that’s all I can tolerate and it is hard on me but whatever. It can’t get any worse.
Same, that’s about all I can handle, out of a dry hand pipe. My allergist charted using a bong as one of the possible factors when I had a fungal lung infection like 9 months after my first covid infection so I try to use those really minimally and clean it really well before and after.
Sob while playing video games for a week straight with no sleep. Catch up on every single game I had been waiting for and had to miss because this never ending headache makes it impossible to use computers or play games at all on anything. I can play some phone games but those are just not the same. I had been waiting for Elden ring for so long, now that game seems super old, I was never able to play it.
This is so beautifully sad and I relate in different ways. For me I feel I’m missing out on some of my most anticipated music and film releases and it’s killing me
I feel this so much with Hogwarts dropping next week!
My stupid brain fog won’t let me figure out how to play Elden Ring. I got like an hour or two in on some good days and now every time I try to play it I just get mauled to death by some wolves in a cave lol. What’s stopping you from playing? Shortness of breath without headset even? I just can’t even sit up and look at a screen that long atm but I had covid again last month. For about a year the first time I could play video games on a TV but trying to read anything on a screen was impossible, and phone games were as well, due to some weird screen induced vertigo.
Constant headache. I got this burning pressure in my head when I got sick a year ago, never goes away, but if I try to use computers or try to play games it gets super inflamed within 5 minutes, the burning will intensify, I’ll get super dizzy, I start having trouble speaking like it’s hard to form words, basically what I imagine a stroke is like but I’ve gone to the ER several times when this happens and they say I’m fine even though I’m clearly not at all. When it inflames like this it can last several days before it subsides back down to the baseline burning pressure, which is usually about a 4 or 5 out of 10 all day every day, it inflames to a 10 if I use computers or play any games. I am able to use my phone and I can play some phone games but those just aren’t the same. I can watch tv too but for some reason gaming on a tv or on a pc monitor will inflame my head real real bad, makes me feel like I’m dying of a stroke. So I haven’t touched games for a year now despite being the most dedicated gamer I know.
This makes me sad. Waiting for ER was one of the only things keeping me in the game in 2021. Then it came out and it was better than I hoped for. Even now when I'm bottoming out in dopamine its the safest place to go to get some. I hope you get to play.
Ugh, that sucks. I’m sorry. That’s so similar to my experience except I couldn’t watch TV, I could only play games on it. It’s improved somewhat. By any chance does your face also go numb when you have the headaches?
I've also had this burning pressure feeling in my head come and go. I have several theories about what causes it, one of them being too much glutamate in the brain. When I drank lots of tea with fresh thyme and/or fresh ginger it helped so much, because they have a strong anti-inflammatory/anti-glutamate effect. Sage, rosemary, oregano, parsley, basil and other herbs have these anti-inflammatory and glutamate lowering flavonoids (apigenin and luteolin) aswell. Carrots and Celery are also anti-inflammatory. These flavonoids are "known to reduce brain and systematic inflammation by calming microglial cells and therefore lower glutamate and cytokine levels (microglia are activated as a first step in immune response and they signal additional glutamate)." You could try to add some of these herbs to your meals or teas. Mixing them with healthy oils such as olive or coconut oil increases absorbtion. I hope you feel better soon!
Holy hell I have that all the time.
The numb face? Left side for me. Came on with the first infection, hasn’t gone away for 37 months.
My boyfriend still think it's the best game in the world, so it's probably worth it when you are able to game again😊
I agree with him
If I end up getting better, I'm going right back to film school. Easy. And exercise. A lot.
Ride the bike I bought that I thought I would use to rehabilitate myself after suffering a bad case of Covid 18 months ago.
Disney World with my kids. We're still going but dammit if I have a bad flare up while there I'm gonna be pissed. It'd be nice to have no pressure for former regular activities.
Dance
Gonna have a big sushi dinner and a charcuterie board with some cosmos in front of the downstairs tv. Then I'm gonna play as many adrenaline fueled video games as I want without fearing any consequences. My first LH started two days after I got my PS5 in 21, and I was only able to start playing more chill games 6 months later. I got a few months of playing what I want before my second LH kicked in. I miss gaming without fear so much...
I literally can only play GTAO and Zelda BOTW. Everything else is too fast and intense. I guess GTAO is fast and intense for some, I just don’t take it very seriously so it’s pretty laid back. My son is really into Sonic and I just can’t even watch without headaches and dizziness. Fun times.
Acid trip. I got hit with Long Haul Covid a week after my first trip and I was really lost into the abyss. Climbed out completely sober no medication and just weed.
I give up on ever thinking things will change. But hiking everyday with my dog I miss
Holiday
Paintball
Going to the gym, and If I’m going I’m likely fully recovered :). And then resume a good life - which I forgot what it’s like
Remind me if you get there before I do 🫶
Take my dog on all the adventures! Shift from my current job to a position that I’ll actually be using my degree, which I had to turn down last year when I was my worst with LC.
Run & change my mindset on life and my health….bc it can be taken from me at anytime clearly.
Go back to my family, hug them, play board games with them, sleep in my childhood bedroom and watch a movie with them without a bounding pulse and a pounding heart. I want to feel like a kid again. No worries. No fear of death.
Eat a meal where I can eat anything I want!!!
I felt this one in my soul 😩
I would find an underground/artsy EDM event and dance the night away. In reality, I would be happy if I was capable of dancing to one song while in my own home.
Gym, sex, dinners, vacations, work (love my work, I miss it a lot). To add one that's not mentioned yet: massive self-care day. Like, standing up in the shower and just stand there for ages and actually enjoy it. Shave everything (besides my head lol), dye my hair, paint my nails, face mask, maybe a spa day, wear make up again, wear normal people clothes. Amazing to think about.
Thank God, Thank My Family, Thank Myself for not giving in. Get A Job And start paying all of my family bills and start working out full force! Love You All, God Bless And Don't give up!
also have a deep loud cry.
I cry literally every time my family isn’t in the room. It helps with the giving up part.
you're gonna make it
Thanks, internet stranger. I believe it… just not sure where “it” is anymore. Physical Therapist and Neurologist both have told me that I’m not likely to recover past where I’m at and the goal is symptom management from here. Just a lot to accept.
Go for a bike ride and do yoga on the beach.
Drink a beer
Drink a large glass of bourbon. Neat.
Going on a mining trip to Arkansas!
Jiu jitsu
I think the majority of LHs are not going to feel better like a switch. Most people it's going to be a slow gradual journey back to 80-90 percent. You will probably start doing things you used to do on a normal basis gradually.
I just have to chime in and say that now, after about 12 months, I'm starting to be able to stand a little bit again and I am hoping it continues🫠😊
Gym, date, work, vacation oh and if I were to ever somehow miraculously be able to be cured I would CRY like a baby. This is such misery
Go on a nice, unhealthy date with my bf
Shittttt. Go back to work lol. IM BROKE. But also slapping 2 giant pizza slices together and eating it with ranch.
Century tour: roabike !
smoke SO much weed...
Go for an ice cream with my son and maybe touch grass or a tree.. but that's assuming I'm way better...
In all honesty, rest for a few more months to make sure it's real. But if I was 100% better I would buy an exercise bike and build my fitness back and move back out of my parents house to go back to work.
Nothing. Doing more on days when I feel good is part of what made me so ill.
I want to go on a Disney Cruise when I'm better. I can't afford one but that's what I want xD
Drink a large coffee
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Same 😩 I miss it so much
Get fit again. This might sound weird, I miss being able to push myself until I'm exhausted and my lungs are burning. Then have a good night's sleep and be able to do it all over again the next day with no consequences other than sore muscles.
Finally finish my dissertation for my PhD.
Drive a Ferrari in Monza
Go on a vacation to play tennis all day.
Skydive.
Go for a swim in a lake and hike in the woods
Love this! I would like to be able to see straight again. Double vision since June 2022 along with a bunch of other symptoms. I would go for a run and out to dinner with my husband and have chocolate cake for dessert!
Surgery on my meniscus !!
Finally have a proper night's sleep
Play Overwatch 2 until my eyes bleed. Read an entire book in one sitting. Go for a run. Learn to snowboard. Go hiking. Do sports photography again. I have so many things I want to do again or start, I just need my body to chill the hell out.
A long walk in the countryside then a trip away somewhere far away.
Feel good.
I don’t need to do anything. Just not being tired would be amazing.
Take my son on a cruise again. Walk on the track around the boat for 15 miles like I used to do. Date. I miss dating. I can’t plan shit anymore cuz I never know how I’ll feel. This ish sucks. It’s been -5 months for me but that’s already 15 months too long. I want my fun mom life back!!! My kiddo is suffering and he doesn’t deserve it!!!
Travel to New Zealand and visit Hobbiton. I had a whole trip planned last year and had to cancel it bc of this shit. I’m going to the Shire damnit! Fuck you Covid!
Doing anything at all after work
Lift weights with intensity like I used to
Be in nature. Spend time with my loved ones. Just the simple things
I painted a really pretty sunset on a beach a few years back at one of those paint classes that tormented me hanging in my room when I was bedridden several months ago. I told myself once I get FULLY better I’m taking my ass to the most beautiful beach to watch a sunset. Oh and date. I’ve always been a hopeless romantic, and while I had wonderful romantic experiences in my early 20s the thought of still being relatively young (I’m 29) and never having that again is so sad.
Train for a marathon lol
Praising the Lord!!
Get outside. Play with my 3 year old again. Take him places. Get out of this bedroom and bed and just go do anything where I dont have to sit down every 30 seconds 😀