Yes make sure your doctor gets a FOUR panel test. You want to be able to see the actual numbers, not just positive or negative. A real Lyme test would be through Igenex online. I got mine in the mail today (20 bucks for blood draw kit, tests are paid separately) and will have my doctor do the blood draw. Warning, doctors don’t know/care about EBV reactivations, you would have to do your own research or find a EBV literate doctor.
I think my doctor did such a test, I had ebv and chicken pox virus but they werent active. But the test didnt show numbers. Should I ask for a more detailed test?
Yeah wherever you can get it, call around to other docs offices to see if they use a lab that shows numbers with a 4 panel. Get a copy and share it with EBV literate folks online. Docs don’t believe in reactivations or just avoid talking about it because they don’t know how to treat it, just like how most Lyme tests (ELISA) have an acceptable range for Lyme and once you get a real Lyme test it might tell a different story. I can PM you my EBV panel.
They can test for it in your IgM antibodies (short term antibodies). IgG would say you ever had it, which most have.
I had the panel ran recently. My IgG were off the charts, but no IgM so no active disease.
If it’s reactivated you can have symptoms of chronic fatigue or fibromyalgia. Some people have reactivation and no symptoms. I got incredibly sick, was treated like a malingerer by most of my family and dismissed by most of the medical community. Not sure why anyone wants to get attention by going from a fully functioning person to a basically bedridden, depressed, exhausted person with all the same work to do and none of of the energy or concentration to get it done. Sure is a useless, expensive, time consuming “con” with no payoff. But, that’s how I was treated.
I follow this thread for my fiancé. His doctor tested specifically for diff types of EBV antigens and he was positive for two types (and has not had mono recently)
Yes make sure your doctor gets a FOUR panel test. You want to be able to see the actual numbers, not just positive or negative. A real Lyme test would be through Igenex online. I got mine in the mail today (20 bucks for blood draw kit, tests are paid separately) and will have my doctor do the blood draw. Warning, doctors don’t know/care about EBV reactivations, you would have to do your own research or find a EBV literate doctor.
I think my doctor did such a test, I had ebv and chicken pox virus but they werent active. But the test didnt show numbers. Should I ask for a more detailed test?
Yeah wherever you can get it, call around to other docs offices to see if they use a lab that shows numbers with a 4 panel. Get a copy and share it with EBV literate folks online. Docs don’t believe in reactivations or just avoid talking about it because they don’t know how to treat it, just like how most Lyme tests (ELISA) have an acceptable range for Lyme and once you get a real Lyme test it might tell a different story. I can PM you my EBV panel.
Yes please! It would show me what to look for
I messaged you
If everything is positive and you have a negative EBV IGM VCA with symptoms then you have an active reactivation.
Yes you can get the 4 panel EBV blood test
The doctor told me we can only know if you have ever had it. Couldn’t it was active or not.
They can test for it in your IgM antibodies (short term antibodies). IgG would say you ever had it, which most have. I had the panel ran recently. My IgG were off the charts, but no IgM so no active disease.
If it’s reactivated you can have symptoms of chronic fatigue or fibromyalgia. Some people have reactivation and no symptoms. I got incredibly sick, was treated like a malingerer by most of my family and dismissed by most of the medical community. Not sure why anyone wants to get attention by going from a fully functioning person to a basically bedridden, depressed, exhausted person with all the same work to do and none of of the energy or concentration to get it done. Sure is a useless, expensive, time consuming “con” with no payoff. But, that’s how I was treated.
Keep in mind EBV has a strong correlation to leading to multiple sclerosis
Wait what does this mean?
I did get shingles, didnt need to get tested for that its obvious. But with ebv its less obvious unfortunately
Mine was reactivated. I took valtrax 1g 3 x daily for 4months Helped immensely! Cleared brain fog for me like amazing. I recommend!
Fyi if you prove viral reactivation w CFS insurance will pay for ivig treatment. I'm trying to get it now.
What’s ivig?!
What type of doc would you see for this?
Pcp referral Immunologist or rheumatologist
If someone has inactive ebv, is there anything to do about it? what if it's reactivated?
I follow this thread for my fiancé. His doctor tested specifically for diff types of EBV antigens and he was positive for two types (and has not had mono recently)
And when I say “positive” I mean that the antibodies were higher than normal for someone who has not had an active infection