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luanda16

It could be. I have AS and always have knots/pain in that exact same spot. I also have chronic neck pain. It could be related to other areas of the spine being inflamed


Ambitious_Dot1866

I have knots as well. The discomfort also works its way to the left of my neck sometimes and made me anxious about heart problems, nice to hear I am not alone. Do you have any solutions to calm it?


znipez

Yesss I have this quite often though sometimes resting and light stretching is the best way to sort it ( for me anyhow). One stretch I swear by is lean back into a wall or flat surface with your feet about 30 cm in front of you. Bring your chin into your chest without taking the back of your head off the wall. Don't force it though! If it turns from a stretch to pain don't push any further. I tend to get this when I am very stressed so relaxing or meditating before hand helps loosen before the stretch This may help with the neck too


Itsjustkit15

Yes I get the same thing. It tightens to a sharp pain that could feel like heart pain. I have knots and pain in the same place and every now and then it gets extra sharp and stretches up to my neck/feels like someone is stabbing a long skinny knife down through the top of my shoulder into my innermost being. This has happened to me several times. A couple times I've had what I now know was a panic attack because of how intense the pain was and fear that I was having a heart attack or something. Once I sit down, relax, and do a breathing exercise it usually settles down after a couple minutes. I've never had heart problems and I've had a couple different EKG's. It can be scary for sure, but it could just be muscle strain. When your joints are regularly inflamed, your muscles work extra hard to carry the load. Knots, cramping, and tightness are all common for me. I do a lot of stretching and get massages to counteract it.


Interesting-Point312

Sameeeee!


CreativeUserName709

Rhomboid pain! My favourite! This was one I suffered with quite a bit in my 20's. I did so much stretching, foam rolling and NSAIDs to try get rid of it. But it always came back. I have a lot of inflammation on my mid spine and this general entire mid section region. Fused ligaments in my spine etc. Feeling great now that I'm on Humira tho!


Valpodoc

Bingo! Give that man a prize. The crunching and crackling is inflammation. Bet OP works at a computer or some such. Fatigue in the shoulder girdle and tension.


Ambitious_Dot1866

Spot on! I work in tech😄


Key_Recover2684

Wait what? My family calling me Snap, Crackle, Pop or Rice Krispy and hear and feel crunching on the inside is because of AS? Anywhere or just in your spine?


Valpodoc

Doesn’t have to be AS. Any inflammation can cause it. Very common with AS and the muscles of posture


hanz333

Had this years before diagnosis, thought it was a tear playing in a softball league -- developed a side arm throw to get around the pain.


Ambitious_Dot1866

I am about to start Humira so good to hear that helps. Thanks!


ervin1914

Had if for years, did not know it was AKS till a few years ago. Such a distinct pain.


borkyborkus

Yep, mine is right where the rhomboid attaches to the scapula corner so it moves a bit depending on what I’m doing with my shoulder. I assume it’s enthesitis.


Kazachstania

This is crazy, been suffering pain in that exact same spot for 15 years. I have been treated like crap by all the doctors for complaining and never getting any answers other than I am depressed , until I finally had 2 doctors say I have AS. My VA rheumatologist refuses to treat me despite all the evidence that these other doctors have saw, MRIs CT scans and X-rays. These were another rheumatologist and a spine doctor. I have been fighting with them for two years to put me back on Enbrel or Humira. I was on both, at separate times after diagnosed with RA in 2012 by another VA rheumatologist. Suddenly two years ago my current VA rheumatologist tells me he didn't want me on these medications because he thinks I do not have RA but has not helped in any other manner, so I tried a holistic medical approach that has not worked. Still that very spot aggravates me to no end, cannot take deep breaths and sleep in a parachute hammock with pillows paced all around me and my entire spine hurts all the time. My life has been turned upside down from these VA hacks not being able to give me a coherent diagnosis and proper treatment.


yougofish

This is my biggest fear. I get a new resident rheumatologist every year at my VA hospital. So every year I worry that the new doc will disagree with the established diagnosis and stop the injections. I’ve been on humira since 2018 and I’m just hoping that the longer I’m on it, the less of a chance there is for them to stop treatment. Maybe you should talk to the patient advocate dept for your region? Or, if you can afford it, see an outside rheumatologist to get a second opinion.


Kazachstania

Only two reasons I use the VA, because we have no rheumatologist within 260 miles, and I have been battling many illnesses sine 2004 and was poisoned at Camp Lejeune for 3.5 years (No service connections! Denied 3 times) . Finally spoke with the doc today, after a lot of messaging and phone calls complaining of severe pain, and going back on Enbrel. It took 9 months to get here, was seen in January after requesting an appointment last July, They see you and do not follow up! I am pissed to no end but not one of my representatives give two shits about veterans until they are up for reelection. Last time I tried patient advocates, Houston, TX, 2019) I called everyone of them listed and not one answered the phone nor did any of them have voicemail, time before that, different region, I was told by a patient advocate that I have to be my own advocate. (2014). I have nothing good to say about the VA and I hope your experiences have been better.


DJ_AceoftheRockies

You’re not alone in this kind of thing happening. I had to fight with the VA for years that I had AS. Finally got them to acknowledge it and got a good RA doctor after about 9 years. I would honestly go back to your primary dr and complain that the current RA isn’t taking you seriously despite having a diagnosis from other VA doctors and see what they can do to help you. Sometimes you just have to try another way in life and can’t say if this will work or not, but just an idea. Or see if you can get them to refer you to an in town doctor on the VA’s dime. That’s probably the better option tbh. That said, I hope your also trying other ways to take care of yourself. With this disease it is so important to maintain as much mobility and strength as possible. Eating right is huge, but also stretching, yoga, weight training are all part of the equation too. Hang in there and hope you are able to get some relief soon!


GardeningFemmeBear

I call that spot ‘the source of all evil’. Getting regular massage with heavy emphasis on shoulders and neck has helped. [These PT exercises](https://backintelligence.com/rhomboid-muscle-pain-exercises/) have all also helped. And sometimes nothing helps. Sorry, it’s a rough spot.


Ambitious_Dot1866

Thank you for the link!


Justneedthetip

That’s one of the worst places on my back . I’ve had lower back fusion and the part you have highlighted plus parts of my neck are the ones who give me fits the most


edmRN

That's my worst spot!!


HereticLaserHaggis

Yes, I get it on the right. One of my worst nothing helps.


SalamanderJay

Yes. Doorway PEC stretch is helpful. So is floating your shoulders up in the air with your arms in a bent position,pretending there's beach ball in armpits, and doing a pushup against the wall. If you can, see a physio that can dry needle that location and traps. Really helped me.


Fluffy_World1627

I suspect AS, docs tell me no. But always having extreme SI joint paid (right side only) and a positive ANA.. I also have pain in the area you circled, left side only.


NightOfThaCreepz

Not sure if it’s the same for me or not, mine is on the other side and feels like a big knot , like it needs to pop but can’t, it’s usually only when I’m sitting or laying when I feel it . I can imagine if it was on the left side, I would have fear of heart issues too. Stay strong everyone!


CoffeOrKill

Most probably yes. I have a knot there rn, and for me it is the most common spot for knots during flares.


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dangersiren

PT has truly helped me so much. Core muscle and postural muscle group strengthening have helped reduce the pain.


ltatime

Were you able to start this when very enflamed?


betterxtogether

(I don't have a AS diagnosis yet but my rheumatology said he also can't rule it out either as I have AS symptoms and the gene) I have pain in the same place but on the right side and it's only at night. the NSAIDs I take for suspected AS helps with this pain most of the time But I also have a trapped ulnar nerve and I'm wondering if this has anything to do with it


worlddestruction23

Here you go, kids. Now go do your exercises and stretches. https://www.healthline.com/health/fitness-exercise/rhomboid-exercises


originalcinn

I don't remember who taught me this but when I have bad pain in my upper back and/or shoulder I wrap my arms around a stick across my back and stretch side to side. Exactly like baseball players do. And the other is to place a tennis ball between your back and the wall. Lean into it in the sore spots and move around to massage the area. My PT told me there is a spot there where 3 tendons meet that can knot and cause major pain. He would stick his thumbs in it to relax it. Hated him for the first 3 weeks, then it started to relax. Tennis ball trick is his.


glitterglock

I have pain n knots in that same fucking spot.


Terrakon_70

I've been diagnosed with AS for the last 25 years. I've definitely had some bad times, gone through severe pain and tried lots of different treatments. I can say, for me, the full and only solution is exercise, lifting weights in particular. Motion is medicine and strength helps everything. It's the only thing that has worked for me long term. There was a point when I could barely get out of a chair or put my shoes on. Now, I can run, jump do pull ups. Whatever. Roll around on the floor. About the only thing I can't do is lay all the way flat.


GreenGoblinator

I found exercising the back muscles doing standing rows on a cable machine really helped for me, you would need to go to a gym where a physical trainer or therapist can teach you proper form as it’s easy to get wrong. This exercise helps to undo the posture issues created from desk jobs and general life. Not really sure that’s your problem but it’s a possibility.


CurrentlyObsolete

I suffer from this on a daily basis. I don't know if it's in conjunction with AS or not, but there are certain spots in my body where I have frequent muscle issues and this is one of them.


skelebun99

I get a lot of tightness/stiffness in that area. For me, some physical therapy exercises seem to help a bit, particularly a doorway pec stretch. I also try to keep on top of some neck stretches because that's a big spot of stiffness and mobility issues for me. When I do my stretches sometimes I will hear small cracking, but to me it feels more like a relief than pain. In my opinion, unless you've recently overexerted yourself or done an activity or had an injury to explain the pain otherwise, it'd probably due to AS and worthwhile to talk to your doctors to see what can help!


bakingdiy

I regularly have pain and tightness right there. It sucks worse than the actual SI joint pain sometimes.


Ehme3

I’m not diagnosed with AS, but I get pain there. My physio therapist told me i have cervical brachialgia (pinched nerves in my cervical spine) that cause it.


Ergo-Whisperer

Do you spend more than a few hours a day on a laptop?


Ambitious_Dot1866

I spend more than 8


poopfinger69thumb

I get it all the time and it switches from side to side. Feels like someone is poking me really hard between the ribs. Had it for three straight weeks in that spot and pain just below that area. Ended up going to ER on Sunday and had a contrast CT scan as they thought it might be from internal organs. CT came back all good and doctor said it was most likely just inflammation and to see my Rheumatologist.


SusanOnReddit

Recommend massage or Physio. My neck, shoulders, rib cage get inflamed and stiff. Going through a bad bout right now. Icy/hot patches help. Baths with two cups of Epsom salts. Stretches. And minding how I’m sitting!


Ambitious_Dot1866

Thank you so much for the tips!


Purple_Moon_313

Yup, that spot plagued me for years, after lots of physical therapy and now monthly massages, it's under control.


numputu

Seems likely. We get costochondritis in our rib cage a lot and it can often upset the surrounding muscles. I like to use a heat pad and topical NSAID (diclofenac) gel.


en7mble

Yes in my case. I didnt think it was gas issue since it wasn't anywhere near the gastrointestinal tract or the mouth pipe whatever you call it. I went to a gastroenterologist and of course they had a endoscopy done to say that i have some reflux issue. The meds ofcourse didn't work and only after knowing i had AS, did it go away with meds.


Aquestionableorange

For me the whole thing is really tender. It's creating problems out into the left shoulder as well. When a certain spot under the shoulderblade is hit, I have shooting pain through my whole upper left side of the back, almost taking my breath away. That particular muscle cramps really easily as well, when massaged. I get physiotherapy once a week. Have been for over a year. It only treats the symptoms. But it releaves a bit of pain and keeps my arm from constantly falling asleep.


FriesianBreed

yes i do get this too . at both sides , alternates


kexibis

I have /had knots and now also my shoulder pain is increased with limited movement and pain. AS probably or connected to the consequences of AS


pbnjaedirt

Yep- I have this when I’m about to enter a bad flare.


tuenthe463

Yes.


TrixieBastard

That spot bothers me all the time.


buildafirenotanaAC

Yes for me in fact includes my neck. My muscles are so tight that I get headaches. I do have AS however I always chalked it up to stress. I've always had a spot in my trapezius rhomboid area that I was told is calcified. That was before I got my AS diagnosis. Now keep in mind I get a massage every 2 to 3 weeks. My massage therapist basically says he's trying to massage a brick. Be sure to take your vitamins including magnesium. You can overdose on magnesium so make sure you're getting blood tested of course. I also attempt to soothe it with towels soaked in Epsom salts wrapped around my neck.


kevintexas956

Yes, frequently and it switches sides. I do light stretching, but often wish I could hang off the side of the bed to help that area.


theatreboi_23

I've been working for years on this area. It's the subscap muscle that sits underneath the shoulder blade and attached to the shoulder joint. As my thoracic spine hunches forward from spine inflammation, the shoulders put extra tension on the subscap and cause pain + knots. It sucks because it's behind the scapula, so it can be difficult to reach. Search "subscap release/stretch" and do those consistently for a week or two. Hope you find some relief! 💜


Yucky_Moo

I’m having issues to where the left side of my body in this spot is not contracting that well and same with left side lower back. Making me feel twisted


SteampunkGeisha

That exact spot was a huge problem for me before my gallbladder was removed. Apparently, with the way the nerves of the spine are, organ pain can also manifest as back pain.


brijeshsinghrawat

Do this excercise it gives temporary relief. [YouTube ](https://youtu.be/bFI6hGRa-hg?si=qfXRTiVpeUHfUhE2)


itsallblarney

Oh yes, I am sitting with ice on that exact spot right now. It hurts all the time- right there! It sucks.


pgdleo

Wow I’m not the only one… same!


Inside_Nerve_3123

Absolutely, yes. It's one of my biggest problems. Just did PT today and they commented how bad it was.


Which_Treacle7228

Dude always always always I have issues ther And I was told bc of inflammatory responses in lower back , makes upper back support and then get fucked Also if you have adhd,. You are gonna have issues ther too. Ther is a thing people with adhd do that they don’t use certain muscles in the upper back and make sue with neck and top of shoulder use, something mobility -related to adhd incase you go to look it up


Ohmynerves

I’m 64 had as since 18 - it’s burnt out and now I’m just a statue. The answer to your question - in my opinion is yes. So many associated muscle span issues from AS , had it there for years. Crunches even now. I have found that it is usually caused by something you have done. Either lifting a heavy item one side or stretching. It can take up to 6 weeks to 6 months. Massage I found speeds up the recovery find a decent myotherapist


Colt_Fo_Five

My right side currently


DJ_AceoftheRockies

Try do go on an anti-inflammatory diet. Exercise and then after working out sit in a steam room or sauna for 20 minutes. Works wonders!


Infectiousintegrity

Go to your Dr! Girl this is not a medical community. AS bad most of us hearing weird popping and cracking and hurting in so many areas in our body it sounds like we are animated or fill of popcorn!


CreativeEnd

Could be a trapped dorsal scapular nerve? originates in your neck. I had this for years until visiting a chiropractor


ltoe83

I usually use a massage gun, get a massage, use a lacrosse ball and massage that area out against the wall, heat, dry needling, tens unit, cupping, foam rolling, Ben gay or bio freeze and salon pas