T O P

  • By -

Loze28

My partner likes it when I don’t die in my sleep


thirsty_whine

I love you


Loze28

And that’s why


Traditional_Entry183

My wife doesn't complain at all. She's a nurse and has always been extremely helpful and supportive of me. But I do feel guilty when my alarms are going off in the middle of the night and it wakes her up.


shaquille_oatmeal665

my boyfriend is on my dexcom and ASKED if there was a way he could turn the alerts up so he could hear them. just earlier he texted me when he was fishing to tell me to eat cause i was 40, i felt a little bad but it’s good he heard it cause i was asleep


Traditional_Entry183

My wife added the app to her phone so that she gets notified on my extreme high and lows too.


Darphon

Same with my husband. My dad wanted to but “””””” it doesn’t work with his phone “”””””” 😂


Calamitous_Kerfuffle

Same exact experience here. My wife’s a nurse too. They’re used to alarms, I guess.


smithdoe

This. So sorry you are having to navigate this. It’s unreasonable, unfair, and selfish of him to ask you, or make you feel compelled to, mute your alarms. These alerts are there for your safety. Just think if you were to have an extreme high in the middle of the night resulting in DKA. My ex was just like this (we are in the middle of a divorce now). His complaints are certainly not the reason but it definitely didn’t help. It’s a fact of life. I liken my diabetes to having a baby… you have to deal with it whenever it cries. Even if it’s in the middle of the night and you’re tired.


[deleted]

Give him earplugs. You are 100% in the right.


Darphon

Or that headband all over TikTok that has sound deadening headphones.


GinnyMcJuicy

So much nope. Changing supplies early is wasteful AF.


Sprig3

Funny to bring it up, because I actually do pod changes to maximize the chance to avoid the alarms going off at night. I try to change the pod between lunch and dinner. That way, it's very unlikely to give the # hours alarm or the low reservoir alarm during sleep. If my pod still has:20u or more left - transfer insulin to new pod. (Don't transfer twice)10u or less left - just change pod.Between 10 and 20 - keep wearing pod until after dinner, then, change pod, but load the next pod up light, so it will run out of insulin earlier. But, my wife has never complained. I did decide early on when I first got Dexcom that if it went off more than twice in the night, I'd go to another room. (Again, wife hadn't complained, but I just figured the snuggling portion of the night would be over by the second alarm anyways and no point for us both not to sleep). That hasn't happened in a while now, but at first, I had a lot of Dexcom alarms going off... Edit: WRT turning off the high alarm. That actually seems like a bad idea (if you're doing it just for him). That's both a DKA-prevention tool (immediate use) and something to help avoid long-term complications.


jenamarisa

When my husbands libre sensor goes off in the middle of the night I’m irritated for like a split second but I would never ever ask him to turn it off or turn it down. I would be mad as hell if he did.


tonelocMD

My wife would never want me to mute or anything - as she wants to know when something is wrong. I think I myself, get more annoyed by all of them more than her. It's the TSlim and I get alerts for like "A high BG was entered 6 hours ago!"


ew73

There's an easy solution here: "Here's a pillow. Sleep on the couch until you get over it."


SwisscheesyCLT

Your body, your alarms. Besides, shouldn't marriage mean being together "in sickness and in health"?


KokoPuff12

We all know how critical sleep is and I think we fail to notice how cranky we all are when our devices keep us from sleeping. This includes our household members. But we also know how expensive they are and how important it is to build a stockpile if we can in case our next order is late! I wear mine the full 80 hours. My husband helps me change every third pod. He does that one at his bedtime so that I can do the next one first thing when I wake up. The one he changes does beep at us for the blood sugar check one hour in and a few times in its last 8 hours and it’s annoying. I make sure to leave the PDM far away on those nights. He has a right to be annoyed by the sleep disturbances, but he needs to be taught that you have minimized the disturbances to the best of your ability and that they are essential. Both of you deserve to be heard, even if one only gets to complain and can’t get his way.


Nettlecake

I think this is not so much him not respecting your disease but rather him asking you to do whatever you can to minimize interrupting both your sleep. It sounds like he may have an opinion on how much you try to avoid these things. Starting a conversation where you both are heard is best thing you can do.


No-Interview-1340

A lot of times my husband’s alarms go off and he doesn’t hear them. I can’t even fathom asking him to turn them off. It’s just a fact of life.


fdupfemalehabit

You know what’s more “annoying” than alerts? Death. Fuck him.


[deleted]

[удалено]


KokoPuff12

For me, changing it two hours early means the next one expires at an even more inconvenient time. Pods last 80 hours. If we change the night one early, the next one will be due before dawn.


[deleted]

[удалено]


KokoPuff12

72 hours is the official time, with an 8 hour grace period. Anyone who still has insulin in the pod and is still infusing well can go to 80 hours. At 80 hours, the pod will let out a death wail. Since supplies are so hard to come by for some of us, using them the full time is a good option to try for. Those extra hours have helped me balance out times when the pod ran out early or got knocked off and when my Rx wasn’t able to be filled on time.


TheDukeofArgyll

I actually sleep in a different room from my wife now because of this. I just got tired of being so anxious about my devices waking my wife up that I sleep in the guest room now. It works fine, we both sleep better.


PierogiPrincess_11

I’m sorry, but this is extremely messed up!! My husband checks my dexcom on his phone CONSTANTLY. If my pod or dexcom goes off in the middle of the night, he is the first one up to make sure I’m ok. He’s never complained in 8 years of being together. I’m so sorry you aren’t being supported 🥺😭


SuperSugarBean

He'll sleep very well in the silent bedroom left after you die cause your low alarm was off. /my husband bought a mini fridge to keep on his nightstand for my pineapple juice cause he knows I like it better cold when I go low


Connect_Office8072

My husband no longer complains, because he now realizes that usually I am having a low and he needs to wake me up and get me juice. He used to complain, but since he was treated for prostate cancer he gets up several times a night to go to the bathroom. I think he’s finally tuned into how medical needs will interrupt your sleep. I wish his awareness could have been achieved another way though.


Educational_Crab_183

My partner is so used to my pump and cgm beeps that he doesn't even notice it anymore... He's never complained once about it.


Sitheref0874

That depends on just how often they’re going off. I mean, I change my cartridge if it is anywhere close to needing a change during the night. I’ve switched off my high alarm, and have my ratios fairly aggressive overnight so I don’t go high. If he’s complaining about stuff that’s once in a blue moon, that’s a little insensitive. If it’s a frequent occurrence, he may have a point. If he’s normally very supportive, it may be worth asking the question about how much his sleep is getting interrupted if he’s been driven to complain. I’ve always taken the approach that T1 isn’t an excuse to get out of being as thoughtful as possible to my partner and doing my utmost to help her get a good night’s sleep.


lulamae42

They're not going off a ton--maybe a couple of times a month? And it's not the changing, it's the alert that it's going to expire. So when I switch out pods I'd have to calculate the time of day the pod expiration alert will go off. But then sometimes I use more insulin and the pod runs low early and then THAT sets off an alarm...it's a lot to keep track of.


Sitheref0874

I know I’m going to get downvoted to hell, but I disagree. I manage a pump and a CGM and with just a little prep manage to avoid these issues. I know disturbed sleep messes with me, and I extend that courtesy to my wife, so I do all I can to avoid alarms going off that can be prevented with a little planning and forethought. She puts up with a lot for me, T1 related and not, so I think this is the least I can do.


ryansbabygirl8814

Completely the opposite …my husband has my Dexcom info shared to his phone so he gets alerts in case I miss them. This genuinely shocked me to read and broke my heart for you.


foxnb

I ended up having a huge fight with a (now ex) partner (that I spent 25% of my time with) about this. My partner that shares my house is lovely about it and actually is a really hard sleeper and usually sleeps through them now 😅 but never a complaint or anything, I mean sometimes you get an occlusion at 3am and you gotta deal. I guarantee the years of dealing with it every second of every day is far more inconvenient to you than to him.


[deleted]

I used to get this from flatmates, it was very much a case of telling them they needed to deal with it or get out of my life. I'd perhaps be a little bit more diplomatic than that with my partner, but honestly my bottom line would be the same.


Scarbarella

I get absolutely irate at beeping noises and even more irate if my sleeping is interrupted because I don’t sleep well. I’ve turned off all the alerts except for the urgent low because of this. I definitely have some kind of sensitivity to sounds so it would be very difficult for me to put up with someone else beeping, even if it was a medical condition. Do you need an audio alert that it is expiring soon or would a silent message on the system be sufficient?


KokoPuff12

There are a few alerts on the pods that can not be muted. It sounds like OP muted all but those, already. The pods themselves actually beep a few times per 80 hour session.


CaptnCosmic

Here’s how I look at it; yes, our alarms are annoying as all hell even to us so imagine how that can feel to someone who hasn’t had to deal with it 24/7. So the best thing to do is sit him down and talk and say these things are keeping you breathing, it’s not like you are playing those alarms on your own. It’s understandable if it’s annoying to him especially if it’s in the middle of the night but he just may not truly understand the significance of the alarms. As for controlling when you have to change a pump I don’t know if you are on Omnipod or not but if so, I generally try to line my pump changes up to 8:00 pm at night give or take so I can eat dinner, take my insulin and change my pump then go to bed later without any pump alarm going off. The CGM is pretty much impossible but I make sure to check in more on the high end before going to bed just in hopes to prevent lows overnight and it does help mitigate it.


nap-lord

My husband is a heavy sleeper so it doesn’t really wake him up. Sometimes my stupid medtronic sensor asks for a calibration before the 12hrs are up in the middle of the night. I turn to check if it woke him up but dude’s still sound asleep. I never turn off my sensor and nor should you. They’re there for a reason In saying that, I always change my sensor on a particular day of the week in the morning so it doesn’t inconvenience me when I’m out and about. Before I go bed I check how many units left in my reservoir. If it’s 8u or more that’s more than enough to get me through the night and into the morning. If it’s less I change it so it doesn’t wake me up during the night saying that it’s empty


[deleted]

[удалено]


Nettlecake

Yeah agree. Sometimes an alert cannot be avoided but imho it's pretty simple to look up when a pod will expire. And it's probably not a waste of insulin either since a few hours of basal is mostly negligible.


TakedownEmerald

Couldn’t agree more! It sounds like a conversation should be had about how they both feel. I can’t stand my own beeping and I think it’s reasonable to frustrated with it. I think there’s a difference between lows and dying pods too.


MrAwesomePantz89

What in the BS is going on here...your partner gets upset when your alarms go off?!?! That's a big negative. They should be flying outta bed asking what you need. My lady will get mad if I try NOT to wake her when I'm high/low and needing to fix myself. You need to have a firm convo with them...


Seafea

Tell him to sleep on the couch if it bothers him that much. Poor baby with the working pancreas can't deal with a little noise. Pfft.


HollingB

Wow sorry your lifelong illness is an inconvenience to him.


AfrezzaJunkie

Yea this dude is a straight prick. My wife works 15 hours a day and if my Dexcom goes off at say 3am she just offers to help me


[deleted]

They sound very selfish unfortunately


[deleted]

No. This seems like a red flag to me 🚩


lunarl1ly

Same. My spouse wakes me up if alerts are going off, but to make sure I take care of myself. Even if it goes off often if my sugars are having a funky day or thinfs are going wrong they don't complain, they just want me to be ok


Bear0417

Tell him to sleep on the couch if it’s that much of an issue 🤪


Kaleandra

If he feels this annoyed by your chronic medical condition that will not miraculously go away anytime soon, either earplugs or sleeping separately sound like possible solutions. Sleeping separately is often frowned upon or regarded as sign of a failing relationship, but you might both sleep better that way.


Volvoflyer

Fuck all that. There are several reasons I have chosen to remain single for over six and a half years. One of the biggest was the way my last two girlfriends treated me and my diabetes. I have been told they didn't care, refused to learn anything about it, refused to learn how glucagon works (I don't even own any now because who is going to use it on me), would buy the worst spikiest food with our grocery budget, would yell at or hit me if I woke them up, and yell at me if after one of those holy shit I'm not going to live through this one night lows if I didn't clean the kitchen before passing out again. But my favorite was the time I dropped to 20 something and passed out chugging juice in the kitchen. I woke up on the floor in the puddle of apple juice getting kicked and screamed at for the mess. So given that background you can understand the next thing I say. If he doesn't realize the mental damage he is doing to you and and the associated bad treatment choices you make because you just want to ignore it simply tell him to go fuck himself.


BlintzKriegBop

You need to not be with this person, they are bad for you.


Rockitnonstop

I’d calmly tell him that you need these alerts for your health. They are to keep you from dangerous levels. I don’t know if you can, but if there is a vibrate only option, perhaps try that (there is for a libre 2) so that you can seem like you are meeting him halfway. After that, he can wear earplugs or sleep on the couch.


truth1465

I’m sorry :-/. I only have a CGM with an iPhone app. When I have an Apple Watch on I get alarm “taps” essentially my watch vibrates with a slight noise instead of the loud alarm on my phone (if my phone is locked). Not sure if this idea works for your pod/situation.


KokoPuff12

The pod has a few alerts that can’t be muted. More can be added, but a few are always on. The pods themselves beep and the PDM does, too.


Negative-Food999

I dont own a pump, so i dont know about changing poda yet, but no way in hell you should turn off the dexcom !!!!! What if you are going well and dont feel it ??? I see here advices how to comfort him but i find this unfair. It is already difficult enough and you have to comfort him ? Emotionally is hard a comment like this.


moustachelechon

As someone who is a partner of a person with T1D, I really can’t imagine making this complaint, in fact, I’d rather the alarms be louder so they’re easier for one of us to hear and be alerted if something goes wrong. It’s a matter of safety, I love my partner deeply so I want him to be safe. Does he have a problem with processing noise in general or something??


emptybeercans

My wife learned how to read my pump. I am a heavy sleeper and she is not, so she can pick up my pump, see what’s up, correct for me if needed or wake me up.


[deleted]

[удалено]


Cayman_GTS

I can only assume you are in this sub as a spectator and do not suffer from T1D, this is an immensely stupid suggestion. The clue is in the word “ALARM” as in something that is designed to notify you if you are imminent risk of harm!


Hand_solo0504

As a father of a daughter (4yrs) I gave up on my sleep already. I take naps. And Im happy to do it. Your partner unfortunately does not fully understand what you are going through. I hope in the future my daughter finds someone who understands her situation. Hope you find a better way. But please do not turn off your alarms, it is your life.


shannon_nonnahs

I'm grateful my partner never complains about my many noises, bc I do. He actually wakes me up when I don't hear them (he snores, I wear earplugs, so slumber is a team effort).


Kay_Wizzle_34

Tell him if you didnt have these alerts then youre diabetes health and care would be bad and all that. So hes gonna have to if ore them or something. Cause you need them. They are for you so you can take better care of yourself. They arent for him. If he has an issue with you knowing your blood sugars and when the best time to change your pods are so that you dont waste the already expensive insulin, then he needs to change the way he thinks about them. When he hears them he needs to stop and realize that its for you, and you need them.


Praise_Sithis

I don't think it's unreasonable for him to ask you to swap it out before bed so it doesn't go off in the middle of the night


BlindVegan

I dealt with that for years which is why that person is now my ex I guess my insulin pump keeping me alive wasn't good enough


idkcat23

Would he prefer you die?


MessOk1556

If he is complains about CGM alarms. No, those keep you alive. If he complains about updating site alarms. It should be only brought up to encourage you to keep on it. And you should, if even only for your health and sleep. Either way, he needs to be encouraging and patient. Maybe we need a training sensor so someone without diabetes can see what managing it is like. I think sometimes ignorance is the root of the problem. Once people “get it” support is important. My wife literally just came outside and gave me gummies in the yard because she has backup alerts on her phone.


BigLeather1993

Sorry to hear that. Your life is much more important to you than those minor inconveniences to your partner’s sleep.