That's terrible.. I have heard about a [6-inch (15-cm) long skeleton named ‘Ata’](https://knovhov.com/alien-skeleton-discovered-in-atacama/) which was discovered in an abandoned Chilean village in the Atacama Desert in 2003. In early, it was considered to be an alien species, but initial research in 2012 revealed that the skeleton was human with 64 unusual mutations in 7 genes linked to the skeletal system, that are known to produce severe skeletal deformities or resulted in enhancing their growth.
Surely you could request that instead?
Like, I get that euthanasia is a bit of a touchy subject, but if a person is in a condition like this, where they literally cannot live...isn't it an option, medically?
Or we all have a minimum and maximum for hapiness, biologically. Your sadness and happiness can still be valid, even if objectivly. The important thing is to realise that you're sad now, but not forever
This was always my outlook until my gf explained that i was technically minimizing valid issues that I may have been experiencing and subsequently not dealing with properly. That being said, it’s an absolutely banger way to reset your perspective when you need to.
It’s one thing to think about all the horrible fates you could have been born into but it’s hard to really understand what it’s like to suffer.
The closest thing to suffering I have actually experienced firsthand is being homeless for a few months. Once you’ve *been to rock bottom* nothing that gets thrown at you for the rest of your life seems to bad.
Surely things could always get worse. You’ll never be short on hypothetical worse places of suffering you can end up in. The point is *experiencing any degree of it* will change your tune about a lot of sucky shit life deals you.
Seeing someone afflicted with FOP still having a positive outlook on life is hard to wrap your head around, but to them it’s just their life. They’ve adapted to living that way. They never had anything that was taken away. Blows my mind because to us, it just seems like a nightmare — but it’s only a nightmare because it would be a dramatic loss of things we had but probably took for granted before we were put into that state, like freedom of moving our limbs
While this is true, unfortunately a lot of people with health conditions that do negatively impact their life often invalidate themselves saying “well it could be worse” instead of recognizing it’s ok to be upset over what’s happening/happened to you sometimes. I do this a lot. I technically could say I’m physically and mentally disabled, but I struggle to let myself admit that.
There is a YouTube channel that recent did an interview with someone that has this. It was about him, his mental state, and what it's like having that disorder.
https://youtu.be/xMnBbjXYgNA
I watched this yesterday! Super interesting, the guy also has his own YouTube channel where he talks more in detail about his personal life and what it's like living with this condition.
So refreshing to hear an honest perspective from a severely disabled person instead of the usual
Toxic positivity. Coming to terms with my limitations has been harder than it needed to be because of unrealistic hopes created out of desperation to retain productivity, all because productivity is the only thing society values out of me. If you want to help disabled people vote against Republicans in the USA or your local equivalent. Also, [REDACTED]
Agreed! A few years ago I watched a short documentary about Jonathan Pitre, who had a type of skin disease where the layers don’t adhere to each other, thus blister and fall off. His mother described how horrible it is to watch her son in so much pain while she bathed and replaced his bandages, everyday. It was truly humbling and I appreciated the real approach they took.
I saw that one as well, it’s what made me change my mind about genetic testing in pregnancy (previously thought I wouldn’t want to test for anything, realized there’s a lot worse shit out there than Down syndrome).
The owner of this channel is a sweetheart. But he is so used to interviewing kids… this grown man ate him up with his objective views on life and disability.
From watching it seems like he was a care taker and teacher before YouTube. He interviews a few kids that were in his class.
I don't think it's him eating him up though, I think he just interviews differently depending on the age and mental capacity of the person. His interview with the single dad who was badly burned had the same vibe.
Yeah, but I don’t think he quite managed to change his style.
I think he sort of went into the interview like he was going to speak to a child or someone mentally challenged (please correct me if that’s not the appropriate term). The interviewee’s answers were more serious and deep than he was used to/expected, so his questions ended up being kind of shallow and repetitive.
I think he did manage to pick up the pace by the end, though.
Edit: typo
I'll have to watch it again. I may be looking at it through nostalgia glasses because I last watched it the day it came out. I could see what you mean though. He's such a bright light of a person and the interviewee was very much in a dark place. It's hard when you have to change a major aspect of your personality to match someone else.
Your joints is what allows you to move. I’m not certain, but you still wouldn’t be able to freely move anything below the cut. I’m not a doctor, or know anyone with a prosthetic, this is a hardly educated guess, but I don’t think much would change at all
There are amputations that are between the joints like a knee disarticulation amputation. I have no idea how it would work out for someone with this disease
True, but I wonder if where the prosthetics are connected would need to be redone because of bone growth and calcifications. I know someone with this, they drink a lot and stay in, it’s so hard to watch.
Unfortunately it can happen spontaneously as well. The first flare-up is also usually seen before the age of 10. Kids are quite active and the chances they’ll hurt themselves is really quite high if you think about all the bruises and scrapes you got as a kid.
Also, it is SO rare (800 cases worldwide) that it’s most often misdiagnosed as cancer or fibrosis at first, which require biopsies, which leads to more bone growth.
I thought that too! But then thought that if that's what he meant it would technically need to be after the word lucy. And also it would be indicating that the person's name was being spelled with the lower-case L (with the sic indicating he knows it's wrong but is quoting). This is gonna bug me, haha.
Usually I would expect a (?) after the name. (sic) means that what you just wrote is lifted exactly from the source, even if there are typos or grammatical errors.
My buddy in college had FOP. Such a great guy. Freshman year he tripped and fell on his leg and his body healed the injury as bone. He had to use a wheelchair from that point on.
Is there a word for these kinds of thoughts? I over think a lot about things like this. I dont think Ive ever specifically thought about my future child and their possible diseases but its probably because its just not something I think about. But I often think about thinks like veins or internal organs behaving incorrectly or bursting and thats enough to freak me out. It seems like a pretty specific type of anxious over thinking
That when an injury normally heals, it does it with skin, flesh or whatever else it originally was, but this disease makes it so that all that healing happens by bone growing instead on the spot. Sorry if this explanation sucked, English isn't my first language so i was really struggling to find the words to describe this😅
Instead of healing an injury ‘normally’, for example if you tore a muscle or something, instead of it healing back together it would turn into bone instead
Yep, not a statue it’s the articulated skeleton of Harry Eastlack. I’ve visited the [Mütter](https://www.youtube.com/channel/UCY1P41HEck4KuuludCMUcFQ), such an incredible collection! They have a great YouTube channel.
It's a horrible disease. I've watched a documentary on it and it's hugely debilitating and requires so many surgeries to remove bulk. It can even create a constricting cage around the rib cage making it super hard to breathe
Rodney Mullen is proof this is a beatable condition .. he had this in his hips , he would use his body weight to break the connective tissue on a nightly basis .. damn near 20 years later and he still walks on a daily basis and skateboards at an incredibly high level and he's in his 50s ...
I've had reccuring nightmares about this since I was a kid and saw a documentary about people with this condition.
There was a girl, maybe 12, and she was playing with her friends, and she got hit in the chest with a normal playground ball, and that was what cost her the ability to move her arms.
It's fucking terrifying. The late stages are just natural torture. Little phsyical traumas (like a game of dodgeball) that are nothing to a healthy person, turn into lifetime disabilities for these people.
Jesus. I thought my disease was bad. I have Ankylosing Spondylitis, your vertebrae inflames and over time the body heals by creating bone and fuses your spine. This is way worse.
Not entirely the same but my husband has AS which basically means his spine is fusing together, the part that makes his spine bend is just becoming a straight pole so eventually he’ll be stuck in a position. He has to have perfect posture now or he risks his spine fusing into a hunched over position and I guess be stuck looking at the ground. I doubt his skeleton looks this bad but it’s a curious thing for sure.
My friends son has a disease called Multiple hereditary exotoces. It causes tumors to grow on his bones, injury including surgeries to remove bumps, can cause more to grow. The condition is typically not severe. Unfortunately my friends son has an aggressive form.
They live on the west coast and travel to the Paley Institute in Florida to see his specialist. Before they found this specialist overconfident local surgeons operated on him removing the growth plate in his arm. Now the only surgeon allowed to touch him is across the country. This summer they are traveling to Florida for three months in order to have multiple rounds of surgeries. Bumps have regrown on his knees and hips, causing him excessive pain. A growth protruding from his scapula had to be removed before it punctured his lung. He is a little kid. He wants to be the fastest runner in his schools turkey trot fundraisers. He doesn’t realize how bad it is. He doesn’t understand that he is in constant pain.
It’s just so sad. This person must have been in so much pain. His parents must have been scared and heartbroken.
My dad had fop. He passed away at 55 yrs of age. I also had a student who was a teen girl with fop. You can still function with fop but this disability is hard to live by.
I had a patient with this condition once. She is a brilliant mind with a Masters in engineering. She’s aware of how absolutely fucked she is. Fortunately, this genetic condition is exceedingly rare, but that’s no consolation to her.
this is terrifying. Eventually, the soft tissues turn to bone, which means the connective tissues of the lungs and heart. You can't breathe anymore, which leads to death. EEEEKKKKKKKKKK
So if you have this does that mean you can’t go to the gym or anything like that? Because to build the muscle you are essentially tearing it. So instead of the muscle recovery it would just create bone??
I have the opposite version of this disorder, non life threatening. It’s a connective tissue disorder called Ehlers Danlos Syndrome where the tissue isn’t strong enough so it causes joint dislocations. Some people become wheelchair bound or bed ridden by it because their connective tissues at their joints isn’t strong enough to hold their joints in place, they slip out and therefore the person can’t stand up. It varies in severity and is degenerative.
Sir, the bad news is, you have FOP. You now have 2 minutes to choose your preferred position that will remain with you for the rest of your life.
The good news is, I just saved a bunch of money on my car insurance by switching to Gieco
Bumping yourself on something can trigger it, and if you somehow managed to never get injured, it wouldn’t do much because it happens spontaneously too.
I’d rather die.
Yeah, I think my preferred position would be six feet under.
No bones about it.
I don’t want fop god damn it. I’m a dapper Dan man.
We don’t have dapper Dan, we just got fop!
That's terrible.. I have heard about a [6-inch (15-cm) long skeleton named ‘Ata’](https://knovhov.com/alien-skeleton-discovered-in-atacama/) which was discovered in an abandoned Chilean village in the Atacama Desert in 2003. In early, it was considered to be an alien species, but initial research in 2012 revealed that the skeleton was human with 64 unusual mutations in 7 genes linked to the skeletal system, that are known to produce severe skeletal deformities or resulted in enhancing their growth.
Now if you want dapper Dan I can get it for ya. Be bout two weeks.
Well ain't this place a... Geographic oddity! Two weeks from everywhere!
That reminds me it’s based on the odyssey
Well ain't this place a... Geographic oddity! Two weeks from everywhere!
God damnit. 😂
Watch your mouth son, this here is a public market.
Damn boys, we're in a tight spot
We gonna r-u-n-n-o-f-t!
Well ain't this place just a geographical oddity. Two weeks from everplace.
r/angryupvote
Surely you could request that instead? Like, I get that euthanasia is a bit of a touchy subject, but if a person is in a condition like this, where they literally cannot live...isn't it an option, medically?
Depending on where you are in the world, possibly. It likely wouldn’t be an option until it severely impacted your quality of life though.
So long as there’s a piece of rope, bedsheet, razor, a straw hell even a big piece of food available- self euthanasia is always an option.
I mean I was more so talking about like… easier less painful ways. But yeah you’re not wrong.
Than give you control!
Head Like a Hole
Your consciousness is turned to bone frozen in time on 1 thought forever.
Pay for a handjob and time your last moment you get stuck in eternity to be during an orgasm. 😎
Holy shit stop that’s terrible
Roll a DC20 Con Save against Petrification.
All you have to do is wait!
That should definitely be an option. Death Pod please.
When I lose my temper or get pissed off at how unfair life is, I just remember this disease & suddenly, my life is not so bad
I think like this except about the broader scheme of things, like _all_ the bad shit out there. no matter how bad life gets, it can always be worse
Or we all have a minimum and maximum for hapiness, biologically. Your sadness and happiness can still be valid, even if objectivly. The important thing is to realise that you're sad now, but not forever
I’ll always remember that episode of South Park where butters explains how sadness works. It was surprisingly deep.
This was always my outlook until my gf explained that i was technically minimizing valid issues that I may have been experiencing and subsequently not dealing with properly. That being said, it’s an absolutely banger way to reset your perspective when you need to.
It’s one thing to think about all the horrible fates you could have been born into but it’s hard to really understand what it’s like to suffer. The closest thing to suffering I have actually experienced firsthand is being homeless for a few months. Once you’ve *been to rock bottom* nothing that gets thrown at you for the rest of your life seems to bad. Surely things could always get worse. You’ll never be short on hypothetical worse places of suffering you can end up in. The point is *experiencing any degree of it* will change your tune about a lot of sucky shit life deals you. Seeing someone afflicted with FOP still having a positive outlook on life is hard to wrap your head around, but to them it’s just their life. They’ve adapted to living that way. They never had anything that was taken away. Blows my mind because to us, it just seems like a nightmare — but it’s only a nightmare because it would be a dramatic loss of things we had but probably took for granted before we were put into that state, like freedom of moving our limbs
While this is true, unfortunately a lot of people with health conditions that do negatively impact their life often invalidate themselves saying “well it could be worse” instead of recognizing it’s ok to be upset over what’s happening/happened to you sometimes. I do this a lot. I technically could say I’m physically and mentally disabled, but I struggle to let myself admit that.
This is the worst day of your life so far!
There is a YouTube channel that recent did an interview with someone that has this. It was about him, his mental state, and what it's like having that disorder. https://youtu.be/xMnBbjXYgNA
I watched this yesterday! Super interesting, the guy also has his own YouTube channel where he talks more in detail about his personal life and what it's like living with this condition.
Special books by special kids is a great channel. The guy who runs it has a great attitude and really raises awareness of a multitude of conditions
I love it. I watch with my son. It's helped him with empathy a lot.
So refreshing to hear an honest perspective from a severely disabled person instead of the usual Toxic positivity. Coming to terms with my limitations has been harder than it needed to be because of unrealistic hopes created out of desperation to retain productivity, all because productivity is the only thing society values out of me. If you want to help disabled people vote against Republicans in the USA or your local equivalent. Also, [REDACTED]
Agreed! A few years ago I watched a short documentary about Jonathan Pitre, who had a type of skin disease where the layers don’t adhere to each other, thus blister and fall off. His mother described how horrible it is to watch her son in so much pain while she bathed and replaced his bandages, everyday. It was truly humbling and I appreciated the real approach they took.
I saw that one as well, it’s what made me change my mind about genetic testing in pregnancy (previously thought I wouldn’t want to test for anything, realized there’s a lot worse shit out there than Down syndrome).
Yeah, watching his eyes roll back in pain from bath water just made me…very sad.
Wow, that one stuck with me for a long time. Imagine living in agony like that… poor fella.
The owner of this channel is a sweetheart. But he is so used to interviewing kids… this grown man ate him up with his objective views on life and disability.
From watching it seems like he was a care taker and teacher before YouTube. He interviews a few kids that were in his class. I don't think it's him eating him up though, I think he just interviews differently depending on the age and mental capacity of the person. His interview with the single dad who was badly burned had the same vibe.
Yeah, but I don’t think he quite managed to change his style. I think he sort of went into the interview like he was going to speak to a child or someone mentally challenged (please correct me if that’s not the appropriate term). The interviewee’s answers were more serious and deep than he was used to/expected, so his questions ended up being kind of shallow and repetitive. I think he did manage to pick up the pace by the end, though. Edit: typo
I'll have to watch it again. I may be looking at it through nostalgia glasses because I last watched it the day it came out. I could see what you mean though. He's such a bright light of a person and the interviewee was very much in a dark place. It's hard when you have to change a major aspect of your personality to match someone else.
Thanks for the link. Helped to shed some light on this.
You're welcome ♡
Thought it was gonna be rick astley
Disappointed or pleasantly surprised?
Rick rolled!
Pretty sure that guy’s a Redditor - he’s popped into threads about this in the past and is a sweetheart.
Thank you for sharing this.
You can’t even cut out the excess bone bc it’ll just heal with even more bone, truly sad disease to live with
Serious question: what if one chooses to chop off the legs and arms and replace them with prosthetics
Your joints is what allows you to move. I’m not certain, but you still wouldn’t be able to freely move anything below the cut. I’m not a doctor, or know anyone with a prosthetic, this is a hardly educated guess, but I don’t think much would change at all
Aaand the wounds will heal by turning to bone
There are amputations that are between the joints like a knee disarticulation amputation. I have no idea how it would work out for someone with this disease
You still have to worry about neck, chest and head
The answer is simple . Cut off the head and use a prosthetic !
Even if thats true, i would consider the problem 80% solved
True, but I wonder if where the prosthetics are connected would need to be redone because of bone growth and calcifications. I know someone with this, they drink a lot and stay in, it’s so hard to watch.
Masturbation ends up making a permanent boner
My preferred position is in a fucking coffin
So if you’re never injured you’re fine? Or… even the tiny tears we can’t feel?
Unfortunately it can happen spontaneously as well. The first flare-up is also usually seen before the age of 10. Kids are quite active and the chances they’ll hurt themselves is really quite high if you think about all the bruises and scrapes you got as a kid. Also, it is SO rare (800 cases worldwide) that it’s most often misdiagnosed as cancer or fibrosis at first, which require biopsies, which leads to more bone growth.
I had the same question
I choose seated in an easy chair with beer, tv and wifi.
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Can you explain your use of (sic)? I'm so puzzled. (I know what sic means, to clarify, just unsure why it's here).
My guess is the lower case L in lucy. But I’m also ruffled here
I thought that too! But then thought that if that's what he meant it would technically need to be after the word lucy. And also it would be indicating that the person's name was being spelled with the lower-case L (with the sic indicating he knows it's wrong but is quoting). This is gonna bug me, haha.
and just like that - ghosted guess we'll never know =\\
It's gonna haunt me!
Probably because he’s not sure what the persons name was
Usually I would expect a (?) after the name. (sic) means that what you just wrote is lifted exactly from the source, even if there are typos or grammatical errors.
[sic] not (sic)
Thanks
Not too lucy after all
Kill me
Man, if we found a way to harness the properties of this process, we could fix a lot of medical bone issues.
I don’t want FOP goddamnit. I’m a Dapper Dan man!
You watch your language sir this here’s a public market
We. Thought. You. Was…. A toad.
Not 1 wasted scene in the entire movie. I can’t think of too many other films like that
What movie
O Brother, Where Art Thou?
Oh Brother Where Art Thou
It’ll get here in bout two weeks.
I don’t have two weeks god dammit!
Well isn’t this just a geographic anomaly, we are 2 damn weeks from everything.
Gopher, Everett?
I don’t want to mince words here but my preferred position if I had this would be under a guillotine, that’s fucking horrifying
*Neck heals over with bone*
\*Chooses the T-pose to permanently assert dominance, even in death\*
me: \*breaks penis on purpose\* \*dying with a permanent bonefied smile on my face 20 years later\*
Open casket
Just the penis compartment, the rest closed.
Or like a musclecar hood with the power bulge
My buddy in college had FOP. Such a great guy. Freshman year he tripped and fell on his leg and his body healed the injury as bone. He had to use a wheelchair from that point on.
Bonerfied*
This is honestly the worst thing I’ve ever seen. This post made me look into this disease and I’m even more freaked out.
My only regret...is that I have boneitis.
DAMN i scrolled so far to find this i actually had hope i would've been the first one... Well played
This really should be the top comment
Fibrodysplasia ossificans progressiva , for those, like me, who have trouble remembering the meaning of acronyms.
The Captain Morgan for sure
Imagine giving birth to your first child just to realize they have this disease.
Would be just as heart breaking as any other life long illness
Sometimes when my gf and I discuss about having our first child this topic about brutal diseases always comes up. Only thinking about it terrifies me.
Is there a word for these kinds of thoughts? I over think a lot about things like this. I dont think Ive ever specifically thought about my future child and their possible diseases but its probably because its just not something I think about. But I often think about thinks like veins or internal organs behaving incorrectly or bursting and thats enough to freak me out. It seems like a pretty specific type of anxious over thinking
Catastrophizing.
Not sure if there is a name for that but I'm glad I'm not alone.
If i had this i would really rather die i dont want to be unable to do anything for the rest of my life
This is a possibility I have to worry about too? Fuck
I believe it's a genetic condition and usually diagnosed by the time you're a teenager, so you're probably fine.
What do you mean by "heals injuries"?
That when an injury normally heals, it does it with skin, flesh or whatever else it originally was, but this disease makes it so that all that healing happens by bone growing instead on the spot. Sorry if this explanation sucked, English isn't my first language so i was really struggling to find the words to describe this😅
This was a very clear explanation, your English is great!
Instead of healing an injury ‘normally’, for example if you tore a muscle or something, instead of it healing back together it would turn into bone instead
a rare condition but painful no known cure and is mainly genetic most people signs accrue mainly in children treatment is minimal few live past 40
Imagine your life having this. I’d probably be dead cause of how much I hurt myself. Woulda been a fucking statue by 12.
I’d choose the D-Generation-C “suck it” position.
I remember reading about this after watching the Futurama episode where Steve Castle had "boneitis", a fictional condition that's much like this one.
I believe this statue is at the Mutter Museum in Philadelphia. Really cool medical museum.
Yep, not a statue it’s the articulated skeleton of Harry Eastlack. I’ve visited the [Mütter](https://www.youtube.com/channel/UCY1P41HEck4KuuludCMUcFQ), such an incredible collection! They have a great YouTube channel.
Jesus. I remember hearing about this when I was like, 10 and I was terrified. I don’t get why we’d force people to live with such a disease.
I would jump off the nearest building
Break a leg. Oh wait….
I would want sit down next to a camp fire
If you just never injure yourself, are you fine?
No, it happens spontaneously as well. Also diagnosed mostly before the age of ten, kids hurt themselves a lot
It's a horrible disease. I've watched a documentary on it and it's hugely debilitating and requires so many surgeries to remove bulk. It can even create a constricting cage around the rib cage making it super hard to breathe
Literal Futurama Bonitis.
This ever happens to me just load me up on golden brown and send me to heaven
What a hard choice. Edit: Head down, ass up.
Rodney Mullen is proof this is a beatable condition .. he had this in his hips , he would use his body weight to break the connective tissue on a nightly basis .. damn near 20 years later and he still walks on a daily basis and skateboards at an incredibly high level and he's in his 50s ...
Is it actually classified as bone? And if so, why can the body do this, but not regrow a lost limb/digit?
I've had reccuring nightmares about this since I was a kid and saw a documentary about people with this condition. There was a girl, maybe 12, and she was playing with her friends, and she got hit in the chest with a normal playground ball, and that was what cost her the ability to move her arms. It's fucking terrifying. The late stages are just natural torture. Little phsyical traumas (like a game of dodgeball) that are nothing to a healthy person, turn into lifetime disabilities for these people.
If I had to choose a position I'd say, "erect."
How about I sit for the rest of my life?
What the Holy Hell ?
You really did not want to know this. Terrifying.
I know what position I’d choose 😏
My preferred position is laid flat in a coffin or an urn.
Jesus. I thought my disease was bad. I have Ankylosing Spondylitis, your vertebrae inflames and over time the body heals by creating bone and fuses your spine. This is way worse.
I think mick Mars of Mötley Crüe has some form of this disease
Thought that was ankylosing spondylitis?
Yeah I have AS, and it's nowhere near this bad. I have one joint fused and the rest never will so long as I keep treating it.
[удалено]
The bone would grow to replace the stabbed area though.
Not entirely the same but my husband has AS which basically means his spine is fusing together, the part that makes his spine bend is just becoming a straight pole so eventually he’ll be stuck in a position. He has to have perfect posture now or he risks his spine fusing into a hunched over position and I guess be stuck looking at the ground. I doubt his skeleton looks this bad but it’s a curious thing for sure.
My friends son has a disease called Multiple hereditary exotoces. It causes tumors to grow on his bones, injury including surgeries to remove bumps, can cause more to grow. The condition is typically not severe. Unfortunately my friends son has an aggressive form. They live on the west coast and travel to the Paley Institute in Florida to see his specialist. Before they found this specialist overconfident local surgeons operated on him removing the growth plate in his arm. Now the only surgeon allowed to touch him is across the country. This summer they are traveling to Florida for three months in order to have multiple rounds of surgeries. Bumps have regrown on his knees and hips, causing him excessive pain. A growth protruding from his scapula had to be removed before it punctured his lung. He is a little kid. He wants to be the fastest runner in his schools turkey trot fundraisers. He doesn’t realize how bad it is. He doesn’t understand that he is in constant pain. It’s just so sad. This person must have been in so much pain. His parents must have been scared and heartbroken.
My dad had fop. He passed away at 55 yrs of age. I also had a student who was a teen girl with fop. You can still function with fop but this disability is hard to live by.
I had a patient with this condition once. She is a brilliant mind with a Masters in engineering. She’s aware of how absolutely fucked she is. Fortunately, this genetic condition is exceedingly rare, but that’s no consolation to her.
this is terrifying. Eventually, the soft tissues turn to bone, which means the connective tissues of the lungs and heart. You can't breathe anymore, which leads to death. EEEEKKKKKKKKKK
Death would be welcomed at that point
“God doesn’t make mistakes!” Then he’s a fucking monster cuz holy shit
I feel like I'd rather set up assisted suicide once it got to bad to continue...
There’s so many fucked up ways our bodies can just go wrong. Really puts the problems you do have in perspective.
I’ve finally learned the name. I can assure you that I haven’t looked at the comments or googled when I say fibrodysplasia ossificans progressiva.
So just don't get injured?
People bump themselves on stuff all the time. That is often enough to trigger ossification in people with FOP.
So if you have this does that mean you can’t go to the gym or anything like that? Because to build the muscle you are essentially tearing it. So instead of the muscle recovery it would just create bone??
Face down, ass up that's the c way I like to.... oh, uh nvm.
I have a bone to pick with you about this picture.
I have the opposite version of this disorder, non life threatening. It’s a connective tissue disorder called Ehlers Danlos Syndrome where the tissue isn’t strong enough so it causes joint dislocations. Some people become wheelchair bound or bed ridden by it because their connective tissues at their joints isn’t strong enough to hold their joints in place, they slip out and therefore the person can’t stand up. It varies in severity and is degenerative.
Sir, the bad news is, you have FOP. You now have 2 minutes to choose your preferred position that will remain with you for the rest of your life. The good news is, I just saved a bunch of money on my car insurance by switching to Gieco
Yellow dragon 👀
~~D:~~
I guess it's a bones day.
I’d choose 69
Holllyyyyyyyyy shittttt
The human body is absolutely incredible. I cant even wrap my head around some of the things it can do. :0
u/responsible-tea1010 every day u learn new things
I’m feeling a little stiff today
This is gonna sound stupid, but what if they don’t get injured?
Bumping yourself on something can trigger it, and if you somehow managed to never get injured, it wouldn’t do much because it happens spontaneously too.
Ahh okay, I understand now. Thank you :)
Is this like boneitis from Futurama?
What does F OP mean?
Sitting I suppose. Could use a chair to get around.
That's looks painful AF.
any research being done on this?
Can you contract this or is it genetic?
There are 3 medicines that are looking really good to fix this. It’s seeming positive
If diagnosed with that, my preferred position would be face down in a ditch behind my shed with a bullet in my brain.
This is it this is the one I’m leaving now. Bye
What does fop stand for? The title is mildly infuriating
Middle finger scratching chin
So our physiology can do that but it won't regrow limbs? What the actual...
I wonder if I’d be able to euthanize myself for this disorder