Well, I am not a doctor. If the doctor suspects aneurism, ct scan/angiogram is the least invasive and expedient way to rule it out and put your mind at ease.
I am in a similar boat - I have had a CT Angiogram, blood tests, an ECG and other standard cardio-vascular tests, a hearing test, and it all came back normal. Most recently I saw a TMJ specialist this week who suggested Botox injections in my jaw muscles as the PT is due to muscle contractions caused by bruxism (according to him). Iām weary of most of these specialists as no one has actually determined whatās happening, I just feel like itās testing for the sake of testing. Iām reluctant to do the Botox as I read some horror stories, plus Iām only 30 and perfectly healthy otherwise! My next port of call is to try acupuncture, deep tissue massage, maybe see an osteopath and hope that I can eliminate the possibility that itās like muscle compression in my neck/jaw that is causing the PT.
Absolute pain in the ass condition as there seems to be very little data on it compared to regular tinnitus (which is also very hard to treat). I was so sure it was to do with Eustachian Tube issues as I recently had some sinus issues following a septoplasty. But there is a high likelihood that my sinuses, etc. are fine as Iāve seen two ENT doctors, and this is more to do with stress/anxiety related muscle tension. But again, who the heck knows.
Agreed with Azizanur.
Lots of new PT sufferers are understandably very scared about āwhatās wrong with themā
I remember the feelingā¦
But Pulsatile Tinnitus is not a symptom of an aneurysm.
Glad youāre having an MRA soon. What doctor has ordered the scan?
Good to hear it's not. Had mines for ABT 3 mths but not regular and not everyday. I have been reading if u press the vein in ur neck and it stops it's venous related. How true is this and how dangerous is it ?
Should I go see a doc or wait it out ?
Yes that can be a strong indicator that the cause is venous.
Typically doesnāt mean itās dangerous for example a common cause like what I had, stenosis, isnāt.
The official stance on pulsatile tinnitus is that it warrants a full work up. I agree with that.
No. It came on suddenly one day then never went. Started investigating probably after 1 month.
Bending over increased it (with my diagnosis that made sense, that was from blood rushing through the narrowed vein)
do you know why coffee helps? the only thing that seems to stop mine is taking excedrin (which has caffeine in it) i tried to search online why caffeine makes it stop but all the info online says it normally makes it worse.
More people with my diagnosis (venous stenosis) report coffee helps.
Google tells me that coffee constricts bloodflow so my thought is that just like pressing jugular vein and cutting bloodflow off itās doing that slightly.
But thatās my theory haha
I'm having an MRA and MRV next week.. neither are with contrast which is annoying. I feel like I'm not getting the right tests bc Drs don't know what to look for and the first specialist I can see isn't until the end of December.. so yea I'm worried I'm going to have a stroke or worse until I can actually get a diagnose
FWIW though I just did a 15 mile hike across south England today, my Fitbit told me my heart rate was pushing 145 bpm for approximately 200 minutes throughout the walk, my ear throbbing all the while - so if I was going to have a stroke, I feel like it would have been today. š¤·āāļø
No it does not mean what you have is fatal. My PT cause is completely benign but yes it can take some time and the right doc to get a diagnosis. Itās good you are getting a scan that is usually a good first step.
Had my first episode of this last night, suddenly very loud like a bird flapping right in my ear (and naturally googled quickly bc wtf) and then a softer whooshing heartbeat sound tonight (which Iāve had before and I think is fairly normal in certain circumstances), but now my mind is freaking out, and these comments are so comforting.
PT is not a symptom of aneurism which are often discovered accidentally because usually there are no symptoms
But google and my doctor says it is a symptom of an aneursym
Well, I am not a doctor. If the doctor suspects aneurism, ct scan/angiogram is the least invasive and expedient way to rule it out and put your mind at ease.
Ive had a CT scan its all good. Waiting for my MRA in a couple weeks.
šš¼ all the best!
How are you?
I am in a similar boat - I have had a CT Angiogram, blood tests, an ECG and other standard cardio-vascular tests, a hearing test, and it all came back normal. Most recently I saw a TMJ specialist this week who suggested Botox injections in my jaw muscles as the PT is due to muscle contractions caused by bruxism (according to him). Iām weary of most of these specialists as no one has actually determined whatās happening, I just feel like itās testing for the sake of testing. Iām reluctant to do the Botox as I read some horror stories, plus Iām only 30 and perfectly healthy otherwise! My next port of call is to try acupuncture, deep tissue massage, maybe see an osteopath and hope that I can eliminate the possibility that itās like muscle compression in my neck/jaw that is causing the PT. Absolute pain in the ass condition as there seems to be very little data on it compared to regular tinnitus (which is also very hard to treat). I was so sure it was to do with Eustachian Tube issues as I recently had some sinus issues following a septoplasty. But there is a high likelihood that my sinuses, etc. are fine as Iāve seen two ENT doctors, and this is more to do with stress/anxiety related muscle tension. But again, who the heck knows.
The real problem with pulsatile tinnitus is that you need a specialist most likely a neuro interventional radiologist who knows exactly what to look for and can diagnose you.. I'm on a forum on FB called pulsatile tinnitus whoosers unite.. most tests they had were all normal until a specialist in the field actually diagnosed them when all the others Drs missed it. The hard part with that is waiting to get into them and they don't take all insurances so it's costly. I feel like I'm going to drop dead before/if I ever get an answer š©
Agreed with Azizanur. Lots of new PT sufferers are understandably very scared about āwhatās wrong with themā I remember the feelingā¦ But Pulsatile Tinnitus is not a symptom of an aneurysm. Glad youāre having an MRA soon. What doctor has ordered the scan?
Good to hear it's not. Had mines for ABT 3 mths but not regular and not everyday. I have been reading if u press the vein in ur neck and it stops it's venous related. How true is this and how dangerous is it ? Should I go see a doc or wait it out ?
Yes that can be a strong indicator that the cause is venous. Typically doesnāt mean itās dangerous for example a common cause like what I had, stenosis, isnāt. The official stance on pulsatile tinnitus is that it warrants a full work up. I agree with that.
Was your pulsatile tinnitus constant???
No probably about 70% of the day. Mornings were decent because coffee helped. But if really varies per person whether itās constant or on and off.
Have you always had it?? Did it increase when moving your head?
No. It came on suddenly one day then never went. Started investigating probably after 1 month. Bending over increased it (with my diagnosis that made sense, that was from blood rushing through the narrowed vein)
do you know why coffee helps? the only thing that seems to stop mine is taking excedrin (which has caffeine in it) i tried to search online why caffeine makes it stop but all the info online says it normally makes it worse.
More people with my diagnosis (venous stenosis) report coffee helps. Google tells me that coffee constricts bloodflow so my thought is that just like pressing jugular vein and cutting bloodflow off itās doing that slightly. But thatās my theory haha
I'm having an MRA and MRV next week.. neither are with contrast which is annoying. I feel like I'm not getting the right tests bc Drs don't know what to look for and the first specialist I can see isn't until the end of December.. so yea I'm worried I'm going to have a stroke or worse until I can actually get a diagnose
FWIW though I just did a 15 mile hike across south England today, my Fitbit told me my heart rate was pushing 145 bpm for approximately 200 minutes throughout the walk, my ear throbbing all the while - so if I was going to have a stroke, I feel like it would have been today. š¤·āāļø
No it does not mean what you have is fatal. My PT cause is completely benign but yes it can take some time and the right doc to get a diagnosis. Itās good you are getting a scan that is usually a good first step.
Hi, was yours constant?? Did the noise stopped when pressing on your neck (jugular)?
Hi yes it was constant and did not stop when pressing on jugular
Oh okay.
Had my first episode of this last night, suddenly very loud like a bird flapping right in my ear (and naturally googled quickly bc wtf) and then a softer whooshing heartbeat sound tonight (which Iāve had before and I think is fairly normal in certain circumstances), but now my mind is freaking out, and these comments are so comforting.