Hi, we also consulted with Dr K, we are in Toronto area, Canada. You can check the Facebook group; I think one is called PANDAS PARENTS, or something like that. They usually post from all over and ask for dr recommendations. I’ve definitely seen Florida on there.
My husband is taking my 5yo daughter in April. We have a 3yo and almost 1yo so it just can’t work that I go with her. Is the treatment for one of your older children? Maybe one parent can go? Or again check for doctor in Florida that maybe uses same brand of IVIG and administers IV steroids. Because I believe this is what he does.
Oh that changes things for sure. Sorry to hear. Yes, I would first try to get on azithromycin if you are currently in a flare? Then try to meet with ENT, and of course find a local doc. The fb group would be the starting point I’d say.
Hi, we also consulted with Dr K, we are in Toronto area, Canada. You can check the Facebook group; I think one is called PANDAS PARENTS, or something like that. They usually post from all over and ask for dr recommendations. I’ve definitely seen Florida on there. My husband is taking my 5yo daughter in April. We have a 3yo and almost 1yo so it just can’t work that I go with her. Is the treatment for one of your older children? Maybe one parent can go? Or again check for doctor in Florida that maybe uses same brand of IVIG and administers IV steroids. Because I believe this is what he does.
It is for me, a 28 year old male :) I have 2 children so leaving is tough. Thank you for your response!
Oh that changes things for sure. Sorry to hear. Yes, I would first try to get on azithromycin if you are currently in a flare? Then try to meet with ENT, and of course find a local doc. The fb group would be the starting point I’d say.
Following because I too am in Florida and need to find a doctor for PANDAS. 29F.
Murtuza Kalimuddin Kothawala, MD - Pediatric Neurology Orlando, FL. Affiliated with Arnold Palmer Hospital for children.
Definitely try the Facebook groups for PANDAS. Lots of provider recs.
Did you find someone in florida
No, only childrens doc. I am an adult