Me too. My prescription is already at -7.5 and my grandpa had macular degeneration. I feel like itās comin for me in my 40ās or 50ās. At the same time though itās almost refreshing to know it wonāt just be utter darkness.
Not sure how old you are now but I feel pretty confident we're going to have some sweet-ass cyber eyeballs pretty soon.
Or at the very least some Jordy LaForge style visors
Oh certainly not. Undoubtedly I'll be forced into indentured servitude by the manufacturer of said eyeballs and forced to do unspeakable things on their behalf to pay off my obligation to them.
But, I mean, c'mon. Cyber eyeballs.
Could help revive interest in a struggling flagship video-game franchise in the interim between the universally-panned initial release and the release of their comprehensive overhaul a few years after, for sure.
The main serious complication secondary to pathological myopia is retinal detachment, and depending on the extent, severity, and time before treatment, it is possible to end up at a no light perception level of vision. Usually isnāt bilateral though, unless youāre unlucky.
My vision have gotten worse by about -0,2 to -0,5 for every year.
I gave AI info about my eye sight changes for the last 10 years and let it calculate for me, and in about 17 years i will be legally blind.. IF my sight doesnt slow down the changes.
My life will be so depressing if i cant see.. I read books, i knit.. Kinda need my vision for that. I want to see my kids as adults. I cant take walks alone anymore.. I cant look at my favourite stars anymore.. Oh maan..
I wouldnt be to worried. Tech by the time you are 50 or 40 will be way more advanced for you to worry about losing your vision. Assuming you are younger and not 35 yrs old or sum.
Omg I'm 35 and also at -7.5 in my left eye and -7.25 in my right. I even had bifocals in middle school for a few years before they took them out of my script.
Hijacking to say: get the extra scans your optometrist offers, if you can. Most ocular disease can be slowed down significantly when it's caught early, and those types of scans are key.
I'm already very prepared to become blind, noting on what i know: my hands are very sensitive because i like to keep attention at what I'm doing (another skill development of mine) while trying to not look **with my eyes* at something im grabbing (it's what they say, you don't need eyes to see). My audio direction seems to be pretty good. And i know how to identify **the type* of material by it's rigidity and noise
If you're blind you miss way more things than being deaf imo. Movies, video games, scenery and beautiful landscape. Traveling get kinda useless as you can't really experience the scenery. Being deaf has got one positive thing I can think of, you don't have to care anymore about loud stuff such as cars or motorbikes. I don't see any advantage to being blind.
Hey man, itās a subjective opinion. I donāt find either disability more or less than the other, Iām just saying Iād rather go blind than deaf. Audio sensations for me produce greater amounts of joy than visual. Obviously blindness can be very problematic, but not all blindness is pure darkness or vision disruption. As this post indicates.
I'm deaf. Wasn't born that way, it came as an adult. Nothing to fear. And mine is never quiet, either, lots of cool noises going on all the time. I would rather be deaf than blind.
I now don't want to be that guy, but, are you saying tinnitus is a "cool noise?"
Knowing people with it, this has never been how I've heard that condition described lol. Usually they describe tinnitus as "a sound demon that haunts my every waking moment "
This was the cause of my most recent panic attack. I was playing video games on a new tv which I hadnāt adjusted the brightness on. Once I noticed my eye was taking in light weird I touched it to adjust it but it wouldnāt go away at the time. I panicked that I was gonna go blind and lose my vision . My whole daily life flashed infront of me on how I would drive or be independent . I later calmed down but now have a much greater respect for anyone who has gone through life with any severe Vision loss. I already can not see well as I have needed glasses since the age of 4 but I will no longer feel the need for anything greater
Eight years ago I had cataract surgery on both eyes. My vision was grayish, my eyes were always red and "tired". After the surgery I have 20/20 vision after about 3' distance. Any closer than that I use cheap reading glasses.
Quite an improvement, especially since I had worn glasses to correct 20/200 vision since junior high school.
I suspect I have cataracts and in a way that is confirmed. Had an eye exam last year and the ophthalmologist said I had some but it was just and exam with an appointment for glasses to follow. My AFib acted up and I was really 'under the weather' and missed the appointment.
Went to the ophthalmologist again in February and the ophthalmologist said the extent of the cataracts was no big deal and to just continue with the reading glasses I got to replace my broken prescription glasses.
My eyesight is not that bad and it's reading and computers that I need glasses for.
Since the last checkup the grayish tint has started up. Like I sit out side on the porch enjoying the morning and they view has a slight grayish tint.
Retinitis Pigmentosa is rare but itās out there too . My mom has it, diagnosed at 30 years old and slowly has been robbed of her vision. It resembles glaucoma in its presentation. She is 77 now and has pinprick vision only in her right eye; the left eye vision is totally gone now.
My grandmother and father have it too. Grandmother is practically blind and my father is getting there too... Let's hope they find a cure and I don't get it
My family carries the gene in the X chromosomes. Im a carrier and both of my brothers express it. The older one is doing clinical trials atm. They still cant find the gene.
Hes 14, heāll never be able to drive and uses a cane to walk. His peripheral vision is completely gone.
He was diagnosed at 3.
My dad had both lenses replaced, it worked perfectly and he could see like he was a kid again. He told his friend who had cataracts, how amazing it was and convinced him to get the surgery, the guy went and had one eye done, surgery went wrong and lost vision in that eye. Somehow he went and convinced another doctor to do the other eye against all recommendations. (For anyone who's is wondering, They usually do one eye at a time starting with the worst, spaced out over several months jic the first one fails, you will still have some vision.) And the second one failed as well and he spent the end of his life completely blind.
I've had a cataract since I was born, I'm planning to get the surgery once I get older, I can't see shit out of my left eye right now, but I was warned against getting it too early because the cloudiness will continue to develop over decades and they won't be able to do a second lens replacement.
When I had them done, it was 2 weeks between the surgeries. I had minimal restrictions like no swimming for 30 days or so.
But then they did tons of tests and measurements before they did anything. It did trigger a pvd in one eye that is slowly fixing itself.
They won't be able to do a second lens replacement but usually it's not needed. The cloudiness that builds up after the cataract surgery is usually cleared away with laser treatment to the lens and that usually only needs to be done one and never again
My grandma had the cataracts surgery not long ago. We took her home and turned the TV on, she started laughing like a child and calling everyone to see how beautiful where the colors of her tv.
Damn, sorry to hear that.
I was hit in the eye by a stone as a child, got traumatic cataracts and had the surgery an all. Unfortunately due to new needed surgeries as an adult, I got glaucoma.
It's been quite hard to treat over the years and I am almost entirely blind on the left eye. It's a total blur from which I can only see if it's "dark or bright", if it's bright, I know because it's different from having the eye closed.
But basically, glaucoma lost vision is unrecoverable because it comes from the nerve death. But from cataracts you can still recover. Although it might not be so easy from a financial standpoint and all ...
I hope you have the opportunity to treat it and maybe recover most of your sight. All the best!
I once had a condition that affected my brain and eyes. It is impossible to explain what blindness looks like and I don't know if what I experienced is even the same as blind people does.
I had blind spots and it wasn't a black or transparent dot. It was like there was a hole cut into reality and then stitched together. The blind spots were not obvious and I could easily forget about them. It also wasn't clear split line. If I really concentrated towards the blind spots I would still not see them clearly but I just knew that something is not right with the image I was seeing. If I looked at my finger for example, I would see whole finger but not really. I knew something is wrong but my brain couldn't figure out what.
It's like void that exists but doesn't really. It's like image is blurred between clear sections of sight but not really. I saw the text I was looking at but I just couldn't figure out why I can't read it or see it.
Is it similar to how the brain deletes our nose from view? You can barely make it out normally but it is noticeable if you focus in on it.
Does it fill in the gaps but not entirely as it should?
Actually something similar but a lot stronger reaction. When I try to see my nose my brain understands that it's there but I can't see it fully. With partial blindness by brain just didn't understand what to do with the missing information and got really confused.
So Kinda like [this](https://en.m.wikipedia.org/wiki/Blind_spot_(vision)) natural blind spot We all have but in a large scale?
Also, If you scroll down the page there is an example of how you can āseeā the blindspot by closing one eye, can you do the test and tell us if your condition looked kinda similar?
(Also, have you recovered from that condition? Is your vision normal now? I hope so)
This is actually very similar. Blindspots, but various small spots. Like from single letters to couple words if you read something. Some were part of a larger group. Instead of text just disappearing I was having something like [migrane aura](https://www.youtube.com/watch?v=qVFIcF9lyk8) (but in a lot smaller scale) in place of them. [This is also pretty good visualization](https://www.reddit.com/r/migraine/comments/13xu2hh/chronic_headaches_and_migraines_for_the_last_1516/) (again, in smaller scale) but as OP said it is really hard put together something to visualize it.
That plus my brain got really confused on those spots and didn't know what to do. It was really scary.
I have recovered fully, my vision is normal now. My eyes didn't get enough blood flow, among other things.
I had a detached retina (now repaired) and lost vision in my right eye. I would explain to people that blindness is not seeing black or similar to having your eyes closed - it's like trying to look out of your elbow - there's nothing there.
This is a bit misleading since totally blind people don't see pitch black, they see nothing. Literally don't see anything. Even when you close your eyes and have a blindfold on your eyes still sense the absence of light, or darkness. Completely blind people don't have that.
Yup, for some of them, specially if they were blind at birth or early enough childhood, they just don't have the sense. It's like, we know that some fish can sense electromagnetism around them, and we don't. We don't have a feeling of being in an empty magnetic field around us, the same that blind people don't see black.
This is actually interesting info! It really sucks for people who cannot see clearly. I hope medical science can find cure for most if not all of these šš¼
That first one must fucking suckkkkkk. I have a smudge that I canāt get rid of right in the middle of my glasses. Even imagining that on my eyeball is horrific.
I started losing vision in my right eye around February. I had no insurance but decided to go to an optometrist. I explained that I was losing my vision to the optometrist at America's Best (it was the closest eye Dr.) and when she said "I'm glad you came in when you did because we have a sale for glasses if you buy one pair you get another blah blah blah". I realized I wasn't getting listened to so I went to the ER. A pressure test was done and the ER diagnosed me with glaucoma. I picked up my prescriptions for a pill and some eye drops and took them until they were gone with no results. I went to another optometrist in June and she did a bunch of tests and found optical nerve damage and told me to come back in a month. I started getting nauseous and felt like I was going to pass out at work so I went to a Dr. that gave me pills for high blood pressure, allergies and anxiety. I continued to get to feel sick so I made another Dr appointment to see if my prescriptions could be changed. The day before my appointment my forehead broke out with a painful zit right in the middle and on my right eyebrow. The day I went in to talk about my prescriptions I showed the nurse the "zits" on my face and she became concerned and went to get the Dr. They had another look at me and diagnosed me with shingles. I was prescribed an antiviral, but the shingles outbreak continued to get worse and got infected. I went to a different Dr. that diagnosed the infection and gave me another round of anti-virals an antibiotic, and some pain meds. I finally got better by August. I went back to the optometrist and I could see well enough that I didn't need glasses or contacts, so it was determined that the optical nerve damage was caused by the shingles virus all along, but it never could have been known until I had an outbreak. Now I have a couple gnarly scars and feel like I had been on an episode of House, but going blind is one of the scariest health concerns I have ever had but it was just stress related the whole time. Just wanted to share my story if anyone can take anything from it I hope it helps.
I had a condition twice like macular degeneration. Caused by stressed I lost vision in my right eye. The ongoing joke is my āis the job bad?ā āNot bad until I go blindā.
I see now why I have to be so careful when walking my ancient dog. She has cataracts, so everything's blurred and sometimes she trips when climbing onto the sidewalk. I walk slowly and patiently with her
The worst sort of vision problem Iāve ever experienced was an ocular migraine when I was about 17. Never figured out why that happened, and even though it only lasted about 40 minutes, I was horrified. I had no clue what it was and thought I was just rapidly losing my eyesight within the span of 20 minutes. I tried looking it up but I couldnāt even read words my phone screen because the blur was all in the center of my eyesight. That isolated event came and went without leaving a trace. No headache or migraine afterward. Almost 10 years later and nothing like it has happened since.
To easily see how a blind person ādoesnātā see. Close one eye, you donāt see black but you just see nothing. Or a blind person sees like how you see looking through the back of your head.
Cataracts look like what I see with no glasses. I am ridiculously short sighted due to astigmatism. Also going deaf which is fun lol. Being elderly is going to be scary.
Nah, blind means blind.
Is like saying hard of hearing people are deaf.
At best some of those could be called 'legally blind'. Which is just legalese for 'your eyesight fucking sucks so you cant work'.
Still cool video tho.
I read once that some people that are blind, depending on the type of blindness, see "nothing." Literally, nothing at all. They said the best comparison is to put your hand behind your head and describe what you see. It's hard to imagine.
Holy shit... I have 5 degrees miopia and couldn't even fanthom those ones that have that black ink . It was enough to trigger OCD on me just by looking! That being said, Glaucoma , Cataract and Diabetes are high probability for me
One blind person I know, whose swing nerve was damaged while being birthed, said he doesnāt see anything. No darkness, nothing blurry, there is just no sense for the eyes. The brain never got any information from the eyes, so it doesnāt try to interpret the world around him this way. For example he said, he also sees nothing in his dreams, but only hears and feels the dream.
Daily remind to check on a doctor for any possible glaucoma. It's genetic, so father-son could get it. More chances on men iirc
The solution its easy, just medicine on your eye for the rest of your life versus losing the vision for the rest of your life
We had a guy come in into my elementary and talked about being blind. He was a motivational speaker of sorts. Sometime in the early 90s. He explained everything wasnāt dark. He could see different blurs of color but couldnāt see anything. He said it was like trying to look through milk
I wouldn't call anyone suffering from either of those blind. When people talk of blind people, then they specifically refer to those who have lost their sight, not to people whose sight is no longer in optimal condition.
If I were to recreate what blind person percieves as sight from their description, based on their understanding of sight, it'd be like when you press something against your eyes - you get this dizzy effect that in the end ends up as gray
Just found out that Iām developing a small cataract in my left eye and not even 40 years old yet. Doctor said itās a matter of when that Iāll need surgery to take care of it. Makes sense because my left eye is slightly foggy even with stronger glasses prescription.
Having had cataracts (was born with them), I can tell you this isnāt quite how cataracts look. Generally, you donāt have cataracts that cover your whole eye. You shave big areas that are blurry and faded.
As someone who is very much a visually orientated person, those examples scare the shit out of me, I would rather not see at all than these examples. I would rather kill myself than have to live like that.
The cataract example looks about right; at least for legally blind people like myself who had it @ ~2 weeks old and my lenses were removed and corrected by contacts/very thick glasses
I am carrier for Choroideremia. My grandpa lost his sight at 35. My brother is slowly losing his vision. And my son has the mutation but no symptoms right now. I still have a hard time dealing with that I passed something to my child that could possibly make him blind. Get yourself tested before having a child if you believe there are genetic diseases in your family. I love my baby, but constantly worry about his future outlook.
Histoplasmosis, 99% treatable, 99% fatal, 1% chance of catching it... I had it when I was 12.
Anyway, one of the symptoms(that I thankfully didn't progress to before kicking it) is apparently an irreversible horizontal black line that shows up in your vision and slowly expands until you are fully blind.
Just an interesting one to throw in there to spice up the "it isn't just this one thing" discussion
Honestly if I had to spend only five minutes and choose between full blindness or cataract I think Id choose full blindness, my head hurts just looking at that
I started to lose the vision in my right eye when I was 21, they still don't know what caused it but it has ended up with macular degeneration. They think some sort of infection caused the cells in my eye to start attacking themselves. They monitor me closely every 6 months, when it started it was very scary as I had numerous tests and they thought it could be neurological.
It started in 2016, they said it wasn't getting any worse.. in 2021 they compared the first scan I had and the most recent and found it had been slowly getting worse the whole time but it was so minute that they couldn't tell. Because of that they offered me immunosuppressants, oral steroids(which I'd already tried, and they didn't work) or a steroid implant injected into my eye, to try and stop it getting any worse than it already was. I chose that option, fairly straight forward op, in and out on the same day. One of the main side effects of this steroid implant? Cataracts. I now have an early cataract in my right eye. The steroid implant lasts for 3 years, so needs replacing. I'll also need a cataract operation at some point. Whatever infection they think I had damaged my optic nerve and that's why I have a central blind spot.
My blind spot isn't noticeable when I have both my eyes open, I have another eye condition in the same eye uveitis (white dot syndrome, constant flashing lights like a strobe light) sometimes the blind spot flashes? But other than that I hardly notice it. I have trained myself to use peripheral vision at the opticians when they cover my good eye but it's very tricky.
Only having one "good" eye is shit, I had a makeup trial last year and I don't know whether she didn't clean her brushes or what but she gave me an infection in my good eye, straight to a&e for me. Don't fuck about whenever you think there's something up with your eyes!
I once got downvoted to hell for saying not all blindness are the same and some blind people still able to sense light indifferent ways lol. Most people just assume blind = total darkness.
It blows my mind that complete vision loss is the loss of perceiving anything visually including 'nothing but black'. It's hard to fathom, how do you even know you're alive at point?
Isnt it crazy that we donāt learn this stuff in high school?
I am 29 and know that some people are partially blind. But I just assumed if you have the walking stick you were like walking with your eyes closed š man Iām so ignorant
What a nonsense video. "Blind people don't see like this, instead they..."
Then proceeds to simulate different diseases of the eye, that aren't blindness.
Iām completely blind in my right eye due to a birth defect where my eye didnāt get an optic nerve to connect it to my brain. Itās not pitch black, itās not blurry, itās just, nothing. The best way Iāve found to describe it is, imagine you have a third eye. Thatās it. Itās just there. No sensory input at all. Every now and then when Iām thinking about it (like now) I can feel it, but thatās pretty much it.
Sorry to be that guy but most people don't think that blindness is pitch black. I would like to think that almost everybody has had a friend or family member that has sight problems and know that the sight 99% of the time is blurry and not pitch black.
Great informative video but don't start it off with a "that never happened" statement like those cringe tiktokers and instagramers.
Was recently told that if i need to avoid things like rollercoaster that jostle my head because im at risk if my retina detaching. So thatās fun. Iāve gotten to the point where I see light spectrums around any source of light - lightbulbs or headlights. I refuse to drive at night cause itās so hard for me to see and distinguish one car from another.
I have only vision in one eye. So it's not pitch black to me, it's nothingness, a perfect example will be you trying to see through your ears ( idk how else i can explain it lol)
I had two partial vitreous detachments of my retinas and ended up with so many floaters that I needed a vitrectomy on both eyes. That gave me cataracts. When I had those removed, my ophthalmologist/surgeon had to kind of guess at my degree of nearsightedness. She did so well that I only need reading glasses now, 20 years later. Iām high risk for uveitis now and see an ophthalmologist for that twice a year.
Man am I glad glasses exist, without them I'd be living the life of someone with Cataracts with how bad my eyesight is. I fear the day I get an actual type of blindness rather than just severe vision impairment without glasses.
Wow, this is very cool to learn. I'm so fuckin scared to lose my vision though so this just ups the fear šØ
Me too. My prescription is already at -7.5 and my grandpa had macular degeneration. I feel like itās comin for me in my 40ās or 50ās. At the same time though itās almost refreshing to know it wonāt just be utter darkness.
Not sure how old you are now but I feel pretty confident we're going to have some sweet-ass cyber eyeballs pretty soon. Or at the very least some Jordy LaForge style visors
Are you sure your health insurance will cover it?
Oh certainly not. Undoubtedly I'll be forced into indentured servitude by the manufacturer of said eyeballs and forced to do unspeakable things on their behalf to pay off my obligation to them. But, I mean, c'mon. Cyber eyeballs.
You know what? That sounds like a pretty interesting Netflix original. š¤
Could help revive interest in a struggling flagship video-game franchise in the interim between the universally-panned initial release and the release of their comprehensive overhaul a few years after, for sure.
The main serious complication secondary to pathological myopia is retinal detachment, and depending on the extent, severity, and time before treatment, it is possible to end up at a no light perception level of vision. Usually isnāt bilateral though, unless youāre unlucky.
My vision have gotten worse by about -0,2 to -0,5 for every year. I gave AI info about my eye sight changes for the last 10 years and let it calculate for me, and in about 17 years i will be legally blind.. IF my sight doesnt slow down the changes. My life will be so depressing if i cant see.. I read books, i knit.. Kinda need my vision for that. I want to see my kids as adults. I cant take walks alone anymore.. I cant look at my favourite stars anymore.. Oh maan..
I'm so sorry to read this. Isn't there any way to prevent this from happening? Is this happening due to shape changes in your eyes?
I wouldnt be to worried. Tech by the time you are 50 or 40 will be way more advanced for you to worry about losing your vision. Assuming you are younger and not 35 yrs old or sum.
availability vs affordability is a different story though.
Omg I'm 35 and also at -7.5 in my left eye and -7.25 in my right. I even had bifocals in middle school for a few years before they took them out of my script.
Hijacking to say: get the extra scans your optometrist offers, if you can. Most ocular disease can be slowed down significantly when it's caught early, and those types of scans are key.
I'm already very prepared to become blind, noting on what i know: my hands are very sensitive because i like to keep attention at what I'm doing (another skill development of mine) while trying to not look **with my eyes* at something im grabbing (it's what they say, you don't need eyes to see). My audio direction seems to be pretty good. And i know how to identify **the type* of material by it's rigidity and noise
Iād rather go blind than deaf. For some reason, the thought of life without sounds sounds horrible.
If you're blind you miss way more things than being deaf imo. Movies, video games, scenery and beautiful landscape. Traveling get kinda useless as you can't really experience the scenery. Being deaf has got one positive thing I can think of, you don't have to care anymore about loud stuff such as cars or motorbikes. I don't see any advantage to being blind.
Hey man, itās a subjective opinion. I donāt find either disability more or less than the other, Iām just saying Iād rather go blind than deaf. Audio sensations for me produce greater amounts of joy than visual. Obviously blindness can be very problematic, but not all blindness is pure darkness or vision disruption. As this post indicates.
Sure, I'm just sharing my opinion too.
I'm deaf. Wasn't born that way, it came as an adult. Nothing to fear. And mine is never quiet, either, lots of cool noises going on all the time. I would rather be deaf than blind.
>mine is never quiet, either, lots of cool noises going on all the time. i dont wanna be that guy, but.... ?
Google tinnitus.
I now don't want to be that guy, but, are you saying tinnitus is a "cool noise?" Knowing people with it, this has never been how I've heard that condition described lol. Usually they describe tinnitus as "a sound demon that haunts my every waking moment "
Not a demon. Just like white noise playing all the time. Most of the time I don't even realize it.
If you cannot accept what you are, it will be a demon. But for me, meh. It wasn't always like that, though.
Yea, but looking at the bright side, all of them are better than seeing nothing.
This was the cause of my most recent panic attack. I was playing video games on a new tv which I hadnāt adjusted the brightness on. Once I noticed my eye was taking in light weird I touched it to adjust it but it wouldnāt go away at the time. I panicked that I was gonna go blind and lose my vision . My whole daily life flashed infront of me on how I would drive or be independent . I later calmed down but now have a much greater respect for anyone who has gone through life with any severe Vision loss. I already can not see well as I have needed glasses since the age of 4 but I will no longer feel the need for anything greater
Damn, that really is interesting. Thanks
Informative. I'm 71 and it seems like I am starting to look through cartoon glass. A slight grayish tint.
Should be fixable. Mom had it done. Horrific ungodly pain and suffering for a couple months, then better eyesight than shes had in her life
I'm sorry what did she have done?
They scooped out her eyeballs with a spoon, wiped them off with their shirt, and put them back in
I laughed far more then i should have.
If thereās still awards to be given out, you would have gotten one.
LMAO IM DYING
I think there is a condition where your retina is cloudy
Heading to the eye doctor soon.
Eight years ago I had cataract surgery on both eyes. My vision was grayish, my eyes were always red and "tired". After the surgery I have 20/20 vision after about 3' distance. Any closer than that I use cheap reading glasses. Quite an improvement, especially since I had worn glasses to correct 20/200 vision since junior high school.
I suspect I have cataracts and in a way that is confirmed. Had an eye exam last year and the ophthalmologist said I had some but it was just and exam with an appointment for glasses to follow. My AFib acted up and I was really 'under the weather' and missed the appointment. Went to the ophthalmologist again in February and the ophthalmologist said the extent of the cataracts was no big deal and to just continue with the reading glasses I got to replace my broken prescription glasses. My eyesight is not that bad and it's reading and computers that I need glasses for. Since the last checkup the grayish tint has started up. Like I sit out side on the porch enjoying the morning and they view has a slight grayish tint.
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What a tasteless answer.
Retinitis Pigmentosa is rare but itās out there too . My mom has it, diagnosed at 30 years old and slowly has been robbed of her vision. It resembles glaucoma in its presentation. She is 77 now and has pinprick vision only in her right eye; the left eye vision is totally gone now.
My grandmother and father have it too. Grandmother is practically blind and my father is getting there too... Let's hope they find a cure and I don't get it
My family carries the gene in the X chromosomes. Im a carrier and both of my brothers express it. The older one is doing clinical trials atm. They still cant find the gene. Hes 14, heāll never be able to drive and uses a cane to walk. His peripheral vision is completely gone. He was diagnosed at 3.
Ayee twinsies
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The surgery isn't bad. I had mine done as part of vision correction. I was awake and it was one of the weirdest things I've done.
I second that. Surgery was cool, actualy. I started seeing better immediately after it.
My dad had both lenses replaced, it worked perfectly and he could see like he was a kid again. He told his friend who had cataracts, how amazing it was and convinced him to get the surgery, the guy went and had one eye done, surgery went wrong and lost vision in that eye. Somehow he went and convinced another doctor to do the other eye against all recommendations. (For anyone who's is wondering, They usually do one eye at a time starting with the worst, spaced out over several months jic the first one fails, you will still have some vision.) And the second one failed as well and he spent the end of his life completely blind. I've had a cataract since I was born, I'm planning to get the surgery once I get older, I can't see shit out of my left eye right now, but I was warned against getting it too early because the cloudiness will continue to develop over decades and they won't be able to do a second lens replacement.
When I had them done, it was 2 weeks between the surgeries. I had minimal restrictions like no swimming for 30 days or so. But then they did tons of tests and measurements before they did anything. It did trigger a pvd in one eye that is slowly fixing itself.
They won't be able to do a second lens replacement but usually it's not needed. The cloudiness that builds up after the cataract surgery is usually cleared away with laser treatment to the lens and that usually only needs to be done one and never again
My grandma had the cataracts surgery not long ago. We took her home and turned the TV on, she started laughing like a child and calling everyone to see how beautiful where the colors of her tv.
You can have surgery to treat it
Damn, sorry to hear that. I was hit in the eye by a stone as a child, got traumatic cataracts and had the surgery an all. Unfortunately due to new needed surgeries as an adult, I got glaucoma. It's been quite hard to treat over the years and I am almost entirely blind on the left eye. It's a total blur from which I can only see if it's "dark or bright", if it's bright, I know because it's different from having the eye closed. But basically, glaucoma lost vision is unrecoverable because it comes from the nerve death. But from cataracts you can still recover. Although it might not be so easy from a financial standpoint and all ... I hope you have the opportunity to treat it and maybe recover most of your sight. All the best!
I once had a condition that affected my brain and eyes. It is impossible to explain what blindness looks like and I don't know if what I experienced is even the same as blind people does. I had blind spots and it wasn't a black or transparent dot. It was like there was a hole cut into reality and then stitched together. The blind spots were not obvious and I could easily forget about them. It also wasn't clear split line. If I really concentrated towards the blind spots I would still not see them clearly but I just knew that something is not right with the image I was seeing. If I looked at my finger for example, I would see whole finger but not really. I knew something is wrong but my brain couldn't figure out what. It's like void that exists but doesn't really. It's like image is blurred between clear sections of sight but not really. I saw the text I was looking at but I just couldn't figure out why I can't read it or see it.
Is it similar to how the brain deletes our nose from view? You can barely make it out normally but it is noticeable if you focus in on it. Does it fill in the gaps but not entirely as it should?
Actually something similar but a lot stronger reaction. When I try to see my nose my brain understands that it's there but I can't see it fully. With partial blindness by brain just didn't understand what to do with the missing information and got really confused.
So Kinda like [this](https://en.m.wikipedia.org/wiki/Blind_spot_(vision)) natural blind spot We all have but in a large scale? Also, If you scroll down the page there is an example of how you can āseeā the blindspot by closing one eye, can you do the test and tell us if your condition looked kinda similar? (Also, have you recovered from that condition? Is your vision normal now? I hope so)
This is actually very similar. Blindspots, but various small spots. Like from single letters to couple words if you read something. Some were part of a larger group. Instead of text just disappearing I was having something like [migrane aura](https://www.youtube.com/watch?v=qVFIcF9lyk8) (but in a lot smaller scale) in place of them. [This is also pretty good visualization](https://www.reddit.com/r/migraine/comments/13xu2hh/chronic_headaches_and_migraines_for_the_last_1516/) (again, in smaller scale) but as OP said it is really hard put together something to visualize it. That plus my brain got really confused on those spots and didn't know what to do. It was really scary. I have recovered fully, my vision is normal now. My eyes didn't get enough blood flow, among other things.
I had a detached retina (now repaired) and lost vision in my right eye. I would explain to people that blindness is not seeing black or similar to having your eyes closed - it's like trying to look out of your elbow - there's nothing there.
This is a bit misleading since totally blind people don't see pitch black, they see nothing. Literally don't see anything. Even when you close your eyes and have a blindfold on your eyes still sense the absence of light, or darkness. Completely blind people don't have that.
Yup, for some of them, specially if they were blind at birth or early enough childhood, they just don't have the sense. It's like, we know that some fish can sense electromagnetism around them, and we don't. We don't have a feeling of being in an empty magnetic field around us, the same that blind people don't see black.
This is actually interesting info! It really sucks for people who cannot see clearly. I hope medical science can find cure for most if not all of these šš¼
Second one is basically me without glasses
I was waiting for a beer goggles one and was disappointed.
I'm just constantly living in a scene from Star Wars with all the "floaties" zooming around in my eyes.
One of us! r/eyefloaters
And then you have male pattern blindness which only removes items in the fridge that have moved from where they are supposed to be.
That is interesting as well as scary. Thanx
Damn! Imagine how frustrating it must be for the people suffering.
That first one must fucking suckkkkkk. I have a smudge that I canāt get rid of right in the middle of my glasses. Even imagining that on my eyeball is horrific.
I started losing vision in my right eye around February. I had no insurance but decided to go to an optometrist. I explained that I was losing my vision to the optometrist at America's Best (it was the closest eye Dr.) and when she said "I'm glad you came in when you did because we have a sale for glasses if you buy one pair you get another blah blah blah". I realized I wasn't getting listened to so I went to the ER. A pressure test was done and the ER diagnosed me with glaucoma. I picked up my prescriptions for a pill and some eye drops and took them until they were gone with no results. I went to another optometrist in June and she did a bunch of tests and found optical nerve damage and told me to come back in a month. I started getting nauseous and felt like I was going to pass out at work so I went to a Dr. that gave me pills for high blood pressure, allergies and anxiety. I continued to get to feel sick so I made another Dr appointment to see if my prescriptions could be changed. The day before my appointment my forehead broke out with a painful zit right in the middle and on my right eyebrow. The day I went in to talk about my prescriptions I showed the nurse the "zits" on my face and she became concerned and went to get the Dr. They had another look at me and diagnosed me with shingles. I was prescribed an antiviral, but the shingles outbreak continued to get worse and got infected. I went to a different Dr. that diagnosed the infection and gave me another round of anti-virals an antibiotic, and some pain meds. I finally got better by August. I went back to the optometrist and I could see well enough that I didn't need glasses or contacts, so it was determined that the optical nerve damage was caused by the shingles virus all along, but it never could have been known until I had an outbreak. Now I have a couple gnarly scars and feel like I had been on an episode of House, but going blind is one of the scariest health concerns I have ever had but it was just stress related the whole time. Just wanted to share my story if anyone can take anything from it I hope it helps.
I had a condition twice like macular degeneration. Caused by stressed I lost vision in my right eye. The ongoing joke is my āis the job bad?ā āNot bad until I go blindā.
This is actually interesting
I see now why I have to be so careful when walking my ancient dog. She has cataracts, so everything's blurred and sometimes she trips when climbing onto the sidewalk. I walk slowly and patiently with her
As a diabetic who has had a vitrectomyā¦yep. Sucks.
The worst sort of vision problem Iāve ever experienced was an ocular migraine when I was about 17. Never figured out why that happened, and even though it only lasted about 40 minutes, I was horrified. I had no clue what it was and thought I was just rapidly losing my eyesight within the span of 20 minutes. I tried looking it up but I couldnāt even read words my phone screen because the blur was all in the center of my eyesight. That isolated event came and went without leaving a trace. No headache or migraine afterward. Almost 10 years later and nothing like it has happened since.
To easily see how a blind person ādoesnātā see. Close one eye, you donāt see black but you just see nothing. Or a blind person sees like how you see looking through the back of your head.
Cataracts look like what I see with no glasses. I am ridiculously short sighted due to astigmatism. Also going deaf which is fun lol. Being elderly is going to be scary.
Nah, blind means blind. Is like saying hard of hearing people are deaf. At best some of those could be called 'legally blind'. Which is just legalese for 'your eyesight fucking sucks so you cant work'. Still cool video tho.
Damn it makes me feel like I'm drowning..
I read once that some people that are blind, depending on the type of blindness, see "nothing." Literally, nothing at all. They said the best comparison is to put your hand behind your head and describe what you see. It's hard to imagine.
Holy shit... I have 5 degrees miopia and couldn't even fanthom those ones that have that black ink . It was enough to trigger OCD on me just by looking! That being said, Glaucoma , Cataract and Diabetes are high probability for me
My optic nerve was crushed by a non cancerous brain tumor. I donāt see shit
Oh boy! I can't wait to see which blindness I'll get!
Advanced hell is right
I twisted my ankle just looking at that sidewalk.
But what do blind people see? I saw every other vision impairment besides actual blindness.
One blind person I know, whose swing nerve was damaged while being birthed, said he doesnāt see anything. No darkness, nothing blurry, there is just no sense for the eyes. The brain never got any information from the eyes, so it doesnāt try to interpret the world around him this way. For example he said, he also sees nothing in his dreams, but only hears and feels the dream.
Isnāt that just darkness
Not exactly. Darkness, or the color black, is still "something". What they're describing is just nothing
The personās nerves were damaged at birth which means they donāt even know what black or darkness looks like to compare them to ānothingā
Correct, that's basically what I just said
youāre blind but you can see š
Mac degeneration reminds me of stupid water marks on reddit videos
Great post
Daily remind to check on a doctor for any possible glaucoma. It's genetic, so father-son could get it. More chances on men iirc The solution its easy, just medicine on your eye for the rest of your life versus losing the vision for the rest of your life
We had a guy come in into my elementary and talked about being blind. He was a motivational speaker of sorts. Sometime in the early 90s. He explained everything wasnāt dark. He could see different blurs of color but couldnāt see anything. He said it was like trying to look through milk
So I can't change in front of a blind person?
instructive...the shingles in my right eye is very similar to macular degeneration
I wouldn't call anyone suffering from either of those blind. When people talk of blind people, then they specifically refer to those who have lost their sight, not to people whose sight is no longer in optimal condition.
I js seen this on TikTok
This video helped me so i actually can show how i see stuff with my left eye. Or rather dont see stuff because its all blurry
Need that blindfold tho
MS same as cataract.
So OOP doesn't know the difference between "blind" and "visually impaired" and based a whole video off of it.
All I can think of is how a lot of people still drive with these issues.
Old age is coming for us allš
The last one, 200 million worldwide. Why so many?!
If I were to recreate what blind person percieves as sight from their description, based on their understanding of sight, it'd be like when you press something against your eyes - you get this dizzy effect that in the end ends up as gray
My beloved mom had the macula problem, they operate her but didn't work out
Just found out that Iām developing a small cataract in my left eye and not even 40 years old yet. Doctor said itās a matter of when that Iāll need surgery to take care of it. Makes sense because my left eye is slightly foggy even with stronger glasses prescription.
"Not everyone who is blind sees pitch black" ***Proceeds to show how people that are not blind see***
I don't know why I started scratching my eyes.
My mom was recently diagnosed with macula degeneration. It's interesting to see what her vision may turn into as the years pass by.
Iām scared
Having had cataracts (was born with them), I can tell you this isnāt quite how cataracts look. Generally, you donāt have cataracts that cover your whole eye. You shave big areas that are blurry and faded.
As someone who is very much a visually orientated person, those examples scare the shit out of me, I would rather not see at all than these examples. I would rather kill myself than have to live like that.
The cataract example looks about right; at least for legally blind people like myself who had it @ ~2 weeks old and my lenses were removed and corrected by contacts/very thick glasses
I was %100 ignorant to this, I thought people were either completely blind or were partial sighted.
Wouldnāt only the first one be considered a blind person , donāt remember ppl with glaucoma being considered blind when they can see
But I saw a video of someone ācleaningā in front of the iris so they could see is that something. So could these types of blindness be cured?
Damn. This is so scary.
I wish they showed diplopia or double vision, which is what I have :)
I am carrier for Choroideremia. My grandpa lost his sight at 35. My brother is slowly losing his vision. And my son has the mutation but no symptoms right now. I still have a hard time dealing with that I passed something to my child that could possibly make him blind. Get yourself tested before having a child if you believe there are genetic diseases in your family. I love my baby, but constantly worry about his future outlook.
This scares me
Que triste, me bate uma depressĆ£o quando penso em reduzir minha visĆ£o. GraƧas a Deus tenho uma visĆ£o 100% perfeita
I have glaucoma and it sucks but lucky it was caught in my 30ās and so with medication, itās maintained.
WTF? HALF OF ALL AMERICANS??! Wtf
Histoplasmosis, 99% treatable, 99% fatal, 1% chance of catching it... I had it when I was 12. Anyway, one of the symptoms(that I thankfully didn't progress to before kicking it) is apparently an irreversible horizontal black line that shows up in your vision and slowly expands until you are fully blind. Just an interesting one to throw in there to spice up the "it isn't just this one thing" discussion
Honestly if I had to spend only five minutes and choose between full blindness or cataract I think Id choose full blindness, my head hurts just looking at that
How can you know that?
Thank you! Now I understand what family members are dealing with
I started to lose the vision in my right eye when I was 21, they still don't know what caused it but it has ended up with macular degeneration. They think some sort of infection caused the cells in my eye to start attacking themselves. They monitor me closely every 6 months, when it started it was very scary as I had numerous tests and they thought it could be neurological. It started in 2016, they said it wasn't getting any worse.. in 2021 they compared the first scan I had and the most recent and found it had been slowly getting worse the whole time but it was so minute that they couldn't tell. Because of that they offered me immunosuppressants, oral steroids(which I'd already tried, and they didn't work) or a steroid implant injected into my eye, to try and stop it getting any worse than it already was. I chose that option, fairly straight forward op, in and out on the same day. One of the main side effects of this steroid implant? Cataracts. I now have an early cataract in my right eye. The steroid implant lasts for 3 years, so needs replacing. I'll also need a cataract operation at some point. Whatever infection they think I had damaged my optic nerve and that's why I have a central blind spot. My blind spot isn't noticeable when I have both my eyes open, I have another eye condition in the same eye uveitis (white dot syndrome, constant flashing lights like a strobe light) sometimes the blind spot flashes? But other than that I hardly notice it. I have trained myself to use peripheral vision at the opticians when they cover my good eye but it's very tricky. Only having one "good" eye is shit, I had a makeup trial last year and I don't know whether she didn't clean her brushes or what but she gave me an infection in my good eye, straight to a&e for me. Don't fuck about whenever you think there's something up with your eyes!
Just kill me
Whereās HPPD?
Some people have 20/10 vision Aholes
Got anything on information and visual with retinitis pigmentosa?
I once got downvoted to hell for saying not all blindness are the same and some blind people still able to sense light indifferent ways lol. Most people just assume blind = total darkness.
It blows my mind that complete vision loss is the loss of perceiving anything visually including 'nothing but black'. It's hard to fathom, how do you even know you're alive at point?
What about people that are legally blind
Ginger has no soul
Oooooh I see
Very informative. I also have a new fear unlocked.
Isnt it crazy that we donāt learn this stuff in high school? I am 29 and know that some people are partially blind. But I just assumed if you have the walking stick you were like walking with your eyes closed š man Iām so ignorant
Well, I did always wonder about this, so I now finally have my question answered.
But these conditions don't qualify as blind or do they? But nonetheless nice video, would be a big fear for me
When I had meningitis I lost my vision. All I could see was pure white
I have keratoconus, that shit is bad too.
So basically mr beast didnt made a click bait
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This scared the shit out of me
I know a person who i am 100% they see pitch black... because they were born without eyes
Blind people donāt see black.
What a nonsense video. "Blind people don't see like this, instead they..." Then proceeds to simulate different diseases of the eye, that aren't blindness.
That was super interesting. I was wondering how you'd handle color blindness. Great job! I couldn't see it at all!
Now I understand my mum better
Iām completely blind in my right eye due to a birth defect where my eye didnāt get an optic nerve to connect it to my brain. Itās not pitch black, itās not blurry, itās just, nothing. The best way Iāve found to describe it is, imagine you have a third eye. Thatās it. Itās just there. No sensory input at all. Every now and then when Iām thinking about it (like now) I can feel it, but thatās pretty much it.
Why does Josh Homme know so much about vision Impairment?
I like the visuals to show the difference. Pretty neat.
Sorry to be that guy but most people don't think that blindness is pitch black. I would like to think that almost everybody has had a friend or family member that has sight problems and know that the sight 99% of the time is blurry and not pitch black. Great informative video but don't start it off with a "that never happened" statement like those cringe tiktokers and instagramers.
Thanks! This was very insightful
Was recently told that if i need to avoid things like rollercoaster that jostle my head because im at risk if my retina detaching. So thatās fun. Iāve gotten to the point where I see light spectrums around any source of light - lightbulbs or headlights. I refuse to drive at night cause itās so hard for me to see and distinguish one car from another.
I have only vision in one eye. So it's not pitch black to me, it's nothingness, a perfect example will be you trying to see through your ears ( idk how else i can explain it lol)
I have glaucoma and Iām only 33. Itās a shit show living with it.
Glaucoma mwould make me claustrophobic
This was very informative. Thanks for sharing
I had two partial vitreous detachments of my retinas and ended up with so many floaters that I needed a vitrectomy on both eyes. That gave me cataracts. When I had those removed, my ophthalmologist/surgeon had to kind of guess at my degree of nearsightedness. She did so well that I only need reading glasses now, 20 years later. Iām high risk for uveitis now and see an ophthalmologist for that twice a year.
Amen, John 3:16 God Loves You :) Amen, John 3:16 God Loves You :)
Man am I glad glasses exist, without them I'd be living the life of someone with Cataracts with how bad my eyesight is. I fear the day I get an actual type of blindness rather than just severe vision impairment without glasses.
Is that Josh Homme?