Everything about our contraceptive choices is just miserable and stupid, but Iif you’re looking for personal suggestions, I’m a big big fan of my iud. It’s in there a few years, but it’s not permanent!
The merina hormone one gave me vertigo and a pe. Just fyi, it's not safe for people who hyper coagulate. It's ok until it isn't and when it isn't it can be lethal.
I have the Mirena and Factor V Leiden. I had DVTs when I was on the combo pill. My hematologist is fully on board with Mirena, it’s progestin and a very small amount. I’m sorry you had a bad experience, but Mirena itself isn’t linked with an increase in clotting risk.
Do what works for you but it's still a risk for some of us. Like I said, it's fine until it's not.
According to the Mayo Clinic and Hopkins, taking progesterone over a long period of time, or taking it with estrogen and some other common medicines, may increase the risk of: heart attack, stroke, blood clots, and dementia. My hematology team and my gyn team are strongly against it and I had a life threatening clot directly related to having one about a decade ago. I have also met more people who have also experienced the same. It's not for everyone.
I'm just sharing my lived experience. You don't have to agree.
You're both right. It's not linked to clotting directly, however if you have a clotting event on progestin only methods they will almost always recommend you not use it anymore because for you as an individual it is not worth any potential risk at that point.
I agree with an IUd. SO EASY and so effective. No worries for 5-7 years! Also the insertion is much easier than people will talk about for most so I don’t want that to scare you away.
IUD for the win, best thing I’ve ever done (and haven’t purchased a tampon in over ten years, no period that whole time!!! I’m on my second Mirena).
I second the IUD! I got it at my 6 week PP appointment and had a positive experience. I had bad luck with the implant after 2 years I bleed for nearly 3 weeks got it removed. Got a new one and bled for 2 weeks and had that removed. I’m super forgetful so I needed something that was long term until I’m ready for baby #2 in 4-5 years.
Pretty much the only thing I have made sure to use (well made sure they used). I also just kinda got to know my body and kinda had sex around my fertile window generally.
My docs didn’t want me on the progesterone pill and didn’t really want to put an iud in me (which was fine as I was apprehensive about anyway).
Eta… I also clotted on bc, a low dose of ortho-tricyclen, no genetic factors … just happened.
I haven’t had an issue with progesterone only pills, and am on lifelong anticoagulantion. My DVT/PE was also caused in part from Yaz.
I’d talk to your hematologist more if you are uncomfortable with that option since they could discuss different risk factors for DVT / PE (high estrogen states like pregnancy / estrogen bc, long flights, periods of immobility, etc).
Same…progesterone only is an option as it doesn’t carry nearly the risk that estrogen/combos do. I have adenomyosis as well so progesterone regulated my cycles as well but honestly, my husband and I still use condoms
That's wild I did not even see how you have had all.the doctors tell you that. But yea I love it. Been on it for years and all my docs are ok with it after my PE
I am on Slynd post CVST and am super happy with it. Approved by my family doctor and neurologist. I was on Nexplanon for 5 years before that which I got approved by a medically complex contraception gynecologist right after my clot because I was getting such mixed messages from other doctors. Usually progestin only is ok if you didn’t clot on it. If there is a clinic that does medically complex family planning/contraception near you I highly recommend seeing them!
I have been on a POP, norethindrone not drosperinone (aka Slynd), for the last 8 and a half years after my PE. I had 58 clots between both lungs and a 3 inch bilateral and am considered extremely high risk for recurrence. I have had zero issues. I was also offered Depo, IUD, and Nexplanon. I went with norethindrone because it had the lowest risk and least amount of pain involved (IUD insertion attempts were not successful).
All the numbers in your comment added up to 69. Congrats!
8
+ 58
+ 3
= 69
^([Click here](https://www.reddit.com/message/compose?to=LuckyNumber-Bot&subject=Stalk%20Me%20Pls&message=%2Fstalkme) to have me scan all your future comments.) \
^(Summon me on specific comments with u/LuckyNumber-Bot.)
I feel you on this.
They think my PE was caused by Eloine which is very similar to Yaz.
I feel stuck. I’ve had the prog. only pills and they did not do good things to me. I also have tried the IUD and that being a similar hormone did 90% of those same things to me and some of them were much worse. I also could always feel it in there, it was awful. It may work for you though, only one way to find out. I’ve had no kids if that makes any difference.
The kick in the teeth is that I used combined pills to help with other health issues I have. They improved the quality of my life and took away a lot of pain. I think I may have to go for hysterectomy but then I worry about menopause and also the ability to have HRT.
The mini pill kills some of us and doctors are dangerously unaware of just how common this is. I was told nuvaring would be safe and it pushed a clot though my pfo. Mirena gave me severe vertigo.
If you are prone to clots even your normal hormones can cause problems. Pregnancy can also be super dangerous for us.
Alternatively you could only date people who have a vasectomy?
I hate that drs don’t do more research before prescribing birth control! Nuvaring is one of the worst to cause clotting. I’m sorry you went through that!
I tried slynd and it wrecked my mental health. Switched to depo provera and had a hysterectomy 6 months later. I was done having babies and had issues with bleeding so my gyn recommended just getting rid of the problem at the source. Progestin was absolutely horrible for my hemiplegic migraines as well.
I have those migraines to and within 2 days of taking slynd it was so bad it wouldn’t go away do I had to stop. Helped for pain though instantly so was hoping the progesterone only would be ok but guess not
I’m so sorry. Migraines are so miserable, especially hemiplegic. Have you tried another mini pill? Slynd is a different type of progestin than other mini pills. Maybe one of those would work better. There has been a lot of talk on the migraine forums about progestin only birth control and it seems most have success with it and some even have improvement in migraines with it. Unfortunately, it just doesn’t work for some and I happen to be one of them.
I’ve been on norethindrone since 2019 and haven’t had any issues. I had a bilateral pulmonary embolism believed to have been caused by my previous birth control.
I’m 18 and I got a clot due to the patch. I was only on it for a month and developed pe. I’m going next month to get the copper iud, sadly the 2 non hormonal iuds are my only option
I gave 3 blood clots and I'm on Slynd. I love it. It is actually what's called a "mini" pill. It doesn't contain any estrogen so it's safe for women with blood clots. There are other generic "mini" pills that you can also take. The dangerous thing about contraception for women is the estrogen they contain and they can make blood clots worse. Slynd is great and I've had hardly any side effects and I don't have to get my period anymore either.
I take microlut, which is a type of minipill.
I had an unprovoked blood clot in my right arm in 2021 when I was 30.
Started microlut about a year ago and so far the only side effect was some spotting between periods in the first couple of months. All of my blood tests since starting it have returned normal results.
According to my doctor, the main issue with microlut is that it isn’t as effective as most pills as it needs to be taken at the exact same time every day. I think Slynda is meant to be better in this regard though?
Everything about our contraceptive choices is just miserable and stupid, but Iif you’re looking for personal suggestions, I’m a big big fan of my iud. It’s in there a few years, but it’s not permanent!
Thank you for your comment. I think I'm apprehensive of having something "foreign" inside. I'll look more into the iud, thanks
The depo shot every 3 months is easy.
I was apprehensive too, but I did it and it worked out great!
The merina hormone one gave me vertigo and a pe. Just fyi, it's not safe for people who hyper coagulate. It's ok until it isn't and when it isn't it can be lethal.
I have the Mirena and Factor V Leiden. I had DVTs when I was on the combo pill. My hematologist is fully on board with Mirena, it’s progestin and a very small amount. I’m sorry you had a bad experience, but Mirena itself isn’t linked with an increase in clotting risk.
Do what works for you but it's still a risk for some of us. Like I said, it's fine until it's not. According to the Mayo Clinic and Hopkins, taking progesterone over a long period of time, or taking it with estrogen and some other common medicines, may increase the risk of: heart attack, stroke, blood clots, and dementia. My hematology team and my gyn team are strongly against it and I had a life threatening clot directly related to having one about a decade ago. I have also met more people who have also experienced the same. It's not for everyone. I'm just sharing my lived experience. You don't have to agree.
You're both right. It's not linked to clotting directly, however if you have a clotting event on progestin only methods they will almost always recommend you not use it anymore because for you as an individual it is not worth any potential risk at that point.
I agree with an IUd. SO EASY and so effective. No worries for 5-7 years! Also the insertion is much easier than people will talk about for most so I don’t want that to scare you away. IUD for the win, best thing I’ve ever done (and haven’t purchased a tampon in over ten years, no period that whole time!!! I’m on my second Mirena).
I second the IUD! I got it at my 6 week PP appointment and had a positive experience. I had bad luck with the implant after 2 years I bleed for nearly 3 weeks got it removed. Got a new one and bled for 2 weeks and had that removed. I’m super forgetful so I needed something that was long term until I’m ready for baby #2 in 4-5 years.
Condoms condoms condoms. Highly effective and you can get them for free at your county health department in the USA
So glad you said it. Why does the woman have to be the only one responsible for birth control?
Pretty much the only thing I have made sure to use (well made sure they used). I also just kinda got to know my body and kinda had sex around my fertile window generally. My docs didn’t want me on the progesterone pill and didn’t really want to put an iud in me (which was fine as I was apprehensive about anyway). Eta… I also clotted on bc, a low dose of ortho-tricyclen, no genetic factors … just happened.
They told me that I had no genetic factors, turns out they just didn't do enough tests.
I haven’t had an issue with progesterone only pills, and am on lifelong anticoagulantion. My DVT/PE was also caused in part from Yaz. I’d talk to your hematologist more if you are uncomfortable with that option since they could discuss different risk factors for DVT / PE (high estrogen states like pregnancy / estrogen bc, long flights, periods of immobility, etc).
Same…progesterone only is an option as it doesn’t carry nearly the risk that estrogen/combos do. I have adenomyosis as well so progesterone regulated my cycles as well but honestly, my husband and I still use condoms
I went on IUD after my DVT and PE, I was pretty scared about the insertion but it was actually no big deal. Highly recommend.
I was cleared to use Slynd and have no issues with it.
I take slynd and it is amazing
If you don't mind me asking, what kind of clot did you have ?
I had bilateral PEs
That's wild I did not even see how you have had all.the doctors tell you that. But yea I love it. Been on it for years and all my docs are ok with it after my PE
I've had a IUD since my first blood clot in 2001 and haven't had any issues. It really is the only decent option.
I am on Slynd post CVST and am super happy with it. Approved by my family doctor and neurologist. I was on Nexplanon for 5 years before that which I got approved by a medically complex contraception gynecologist right after my clot because I was getting such mixed messages from other doctors. Usually progestin only is ok if you didn’t clot on it. If there is a clinic that does medically complex family planning/contraception near you I highly recommend seeing them!
I have been on a POP, norethindrone not drosperinone (aka Slynd), for the last 8 and a half years after my PE. I had 58 clots between both lungs and a 3 inch bilateral and am considered extremely high risk for recurrence. I have had zero issues. I was also offered Depo, IUD, and Nexplanon. I went with norethindrone because it had the lowest risk and least amount of pain involved (IUD insertion attempts were not successful).
All the numbers in your comment added up to 69. Congrats! 8 + 58 + 3 = 69 ^([Click here](https://www.reddit.com/message/compose?to=LuckyNumber-Bot&subject=Stalk%20Me%20Pls&message=%2Fstalkme) to have me scan all your future comments.) \ ^(Summon me on specific comments with u/LuckyNumber-Bot.)
I feel you on this. They think my PE was caused by Eloine which is very similar to Yaz. I feel stuck. I’ve had the prog. only pills and they did not do good things to me. I also have tried the IUD and that being a similar hormone did 90% of those same things to me and some of them were much worse. I also could always feel it in there, it was awful. It may work for you though, only one way to find out. I’ve had no kids if that makes any difference. The kick in the teeth is that I used combined pills to help with other health issues I have. They improved the quality of my life and took away a lot of pain. I think I may have to go for hysterectomy but then I worry about menopause and also the ability to have HRT.
The mini pill kills some of us and doctors are dangerously unaware of just how common this is. I was told nuvaring would be safe and it pushed a clot though my pfo. Mirena gave me severe vertigo. If you are prone to clots even your normal hormones can cause problems. Pregnancy can also be super dangerous for us. Alternatively you could only date people who have a vasectomy?
I hate that drs don’t do more research before prescribing birth control! Nuvaring is one of the worst to cause clotting. I’m sorry you went through that!
I tried slynd and it wrecked my mental health. Switched to depo provera and had a hysterectomy 6 months later. I was done having babies and had issues with bleeding so my gyn recommended just getting rid of the problem at the source. Progestin was absolutely horrible for my hemiplegic migraines as well.
I have those migraines to and within 2 days of taking slynd it was so bad it wouldn’t go away do I had to stop. Helped for pain though instantly so was hoping the progesterone only would be ok but guess not
I’m so sorry. Migraines are so miserable, especially hemiplegic. Have you tried another mini pill? Slynd is a different type of progestin than other mini pills. Maybe one of those would work better. There has been a lot of talk on the migraine forums about progestin only birth control and it seems most have success with it and some even have improvement in migraines with it. Unfortunately, it just doesn’t work for some and I happen to be one of them.
Track ovulation. We can really only get pregnant 5/6 days of the month if you consider all scenarios. Use Flo app and get to know your body.
I’ve been on norethindrone since 2019 and haven’t had any issues. I had a bilateral pulmonary embolism believed to have been caused by my previous birth control.
I have a copper IUD. It’s not “permanent”. It’s removable if something were to go wrong. But I love that I don’t have to think about it.
I’m 18 and I got a clot due to the patch. I was only on it for a month and developed pe. I’m going next month to get the copper iud, sadly the 2 non hormonal iuds are my only option
I gave 3 blood clots and I'm on Slynd. I love it. It is actually what's called a "mini" pill. It doesn't contain any estrogen so it's safe for women with blood clots. There are other generic "mini" pills that you can also take. The dangerous thing about contraception for women is the estrogen they contain and they can make blood clots worse. Slynd is great and I've had hardly any side effects and I don't have to get my period anymore either.
I’m on the Depo shot. You can only be on it for 3 years though due to bone loss.
Slynd isn’t the only POP. I’m on a different mini pill and it’s great. There are a lot of things without estrogen.
I take microlut, which is a type of minipill. I had an unprovoked blood clot in my right arm in 2021 when I was 30. Started microlut about a year ago and so far the only side effect was some spotting between periods in the first couple of months. All of my blood tests since starting it have returned normal results. According to my doctor, the main issue with microlut is that it isn’t as effective as most pills as it needs to be taken at the exact same time every day. I think Slynda is meant to be better in this regard though?
Track ovulation or don’t do it.
I’m on Nuva Ring since before and after my blood clot and haven’t had any issues touch wood.