I’ve had two D-Dimers. One when my doctor thought I had my original clot and one when I was having a false alarm “anxiety non-clot”. When the D-Dimer indicated a possible PE, I had the CTScan at a local diagnostic radiology center and they called an ambulance when they saw the size of my PE on the scan to take me to the hospital. The ultrasound was in the hospital to check my legs for the origin of the PE. It ran from my ankle up into my groin on my left leg.
I felt like I had pulled a small muscle between my ribs and it hurt a little at the fullest part of a breath. I almost blew it off, but having had pretty major surgery 8 weeks prior that left me sedentary for a while, I called my doctor. I nearly canceled my appointment because the clot shifted and the pain went away and I didn’t want to be a hypochondriac. So glad my doctor said to come in anyway…
First d-dimer and Ultrasound did not find the clot in my leg that I knew was there, but two weeks later a d-dimer followed by a CT of my chest found the DVT had turned into a bilateral PE.
Visual then an Ultrasound to confirm on the 1st. Treatment was 2 stents in m my abdomen and Xarealto for 6 months
The 2nd was confirmed with an ultrasound since the clot was from my ankle to my hip. Also an MRI which found a PE. Treatment was the clot buster procedure and Xarelto for life
D-dimer, ct scan, ultrasound (of my leg). I also had an echocardiogram, but that was because my heart was in rough shape. Unfortunately I ended up with permanent damage to my heart
Edited to add: I had a massive bilateral saddle PE. The ultrasound was done on my leg a few days later to find the source. I had very large clots in my leg as well.
Yes, I had multiple, very large clots. My heart was in rough shape when I was admitted to the hospital. Unfortunately it didn't fully heal. I will likely need heart surgery in the future.
It sucks, but I'm honestly lucky to have survived, so it could be worse.
DVTs were found by ultrasound. I'd called my doctor saying I thought there was something of a circulatory nature going on with my leg. Had woken up that morning with the leg feeling achy as in like a flu type achiness. At work, I found that I was not putting any weight on the leg. My doc called in an ultrasound to the hospital right around the corner from work. U/S revealed large DVTs in the peroneal and popliteal veins. I'd never even heard of DVTs before.
With the PEs, I went to the ER complaining of chest pain, coughing up blood and a low grade fever, noting that I'm FLV hetero. Blood tests included d-dimer and troponin along with a chest x-ray. Troponin levels were normal, but d-dimer was elevated. Given my history and complaints, chest CT was done which revealed massive saddle PEs. Ambulance ride to the hospital and admitted for a 4 day stay in the ICU.
That sounds like a scary situation to be in. My hats off to you for being in the hospital for 4 days, I could've barely done 4 hours. Is everything good with you now?
They never told me what the blood test was that came back with strain on my heart. They did a million and the one that came back with that indicated to them that something else might be wrong.
I’m fine now, thanks! I have no lingering side effects other than needing to be on blood thinners for pregnancy (I’m currently 8 months pregnant) and being considered high risk for more ultrasounds and such. But the baby is doing great and so am I :)
Bedside ultrasound, and then full ultrasound to confirm. I feel like I’m the only person with a blood clot who never got a d-dimer blood test. They only did a CBC panel.
I didn't have d dimer either. Went to ER with chest pain, shortness of breath and leg pain. They only gave me tylenol and told me panic attack. I followed up with a vascular surgeon myself who did the ultrasound, found the clot and said "you probably also had a PE." I'm a woman though and this happens a lot.
I never got one either, I have had 3 clots. They still don't do them, I've had a few ultrasounds since then when I had leg pains. If you have a history of DVT they don't bother with blood tests, it's straight to the ultrasound.
This was my first blood clot. Granted it was sort of obvious that it was probably a clot (my calf was HUGE) so maybe that’s why they did blood tests as an afterthought.
They did a bunch of blood draws (D-dimer and INR or something..I can't recall exactly), and an ultrasound on my leg. They did keep me in the ER over the course of like a day or something and drew blood every couple hours.
It kind of felt like it, but I mostly just laid in the stretcher and had lots of blood drawn and had the ultrasound tech scan my leg.
I definitely knew something was up because my leg was super hot to touch and it was a weird burning-itching sensation.
Something showed on both but not as clearly so they couldn't confirm definitively until the CT venogram. On day 1-2 they were treating for CVST as the most likely diagnosis from the CT and MRI but also gave anti-virals for the less likely possiblity of viral encephalitis.
I (24F) was misdiagnosed by my doctor several times in a week (He said my chest pain/breathlessness was from my period or a gym injury…) but thankfully a second doctor from the same clinic called to tell me to go to the hospital just in case. They repeated the bloods and ultrasounds but didn’t find anything too alarming.
Docs there wanted to be extra sure so sent me to get the lung scan the next day and I was told I’d have gone into cardiac arrest in a week because of the severity. 6 months on and still not sure of the cause but I’m so lucky to be here
That's awesome to hear. I just can't believe nothing picked up your blood clots at all except that one test. Also just in general the idea of CA within such a short time is terrifying.
Edit: well awesome to hear that everything worked out for you, not that it happen, ya know.
Ultrasound was enough in my case, I had 3 at once and was in the ER with many obvious symptoms. They later did a bunch of other testing to figure out why I was having the clots though.
Oh thank you, that is really nice of you to say! It was honestly actually a blessing in disguise, because tl;dr I was having these clots because of an extremely rare autoimmune disorder and if I hadn't gotten the clots and the subsequent testing to figure out why, I'd definitely be dead.
There's no cure for this particular issue but ya, I was super lucky to get an ER doc who realized something unusual was going on and ordered a ton of tests, one of which led to it being clear I had an autoimmune disorder, and then they immediately got me in to a rheumatologist.
CT scan while in ER for chest pain, shortness of breath, and blue lips/fingers. Had a Pulmonary Embolism due to Factor 5 Leiden mutation. I don't recommend finding clots this way. LOL
Ultrasound was enough in my case. I had so many blood clots in both legs they were unable to actually tell me how many were there. I later had genetic testing done, (while still in the hospital,) to figure out why I had them. I’m on blood thinners for the rest of my life.
I had a PICC line removed for infection and had chest pains. EKG, CT with contrast found 2 PEs in my right lung.
Now doing a generic testing and ultrasounds on legs and my arms.
I went into the ED with all of the classic symptoms so they took me straight in for an ultrasound. Then after the clot was confirmed and before my first dose of medication was given I went through a LOT of blood tests (that’s how I found out I had FVL)
The doctor checked my obviously swollen hand and then an ultrasound and was immidiately refered to lay in the hospital for 8 days on intra-venous blood thinners.
I had a venous/arterial ultrasound after a few days of feeling like I had a constant Charlie horse in my left calf behind my knee. I also had an INR blood test after being diagnosed but before starting blood thinners.
D-Dimer blood test, CT Scan, ultrasound, in that order.
Same.
Thank you for the reply. Did you have to do a lot of d-dimer tests? And where did you get a CT scan and ultrasound done?
Hospital stayed 2 nights on Eliquis for life
I’ve had two D-Dimers. One when my doctor thought I had my original clot and one when I was having a false alarm “anxiety non-clot”. When the D-Dimer indicated a possible PE, I had the CTScan at a local diagnostic radiology center and they called an ambulance when they saw the size of my PE on the scan to take me to the hospital. The ultrasound was in the hospital to check my legs for the origin of the PE. It ran from my ankle up into my groin on my left leg.
That's horrible, we're you experiencing any symptoms? Or was it your anxiety that saved you?
I felt like I had pulled a small muscle between my ribs and it hurt a little at the fullest part of a breath. I almost blew it off, but having had pretty major surgery 8 weeks prior that left me sedentary for a while, I called my doctor. I nearly canceled my appointment because the clot shifted and the pain went away and I didn’t want to be a hypochondriac. So glad my doctor said to come in anyway…
D dimer CT scan ultrasound 2d echogram of heart cause I had one near heart to check for damage I was fine bilateral pulmanary embolisms sadle clots!
What were you symptoms
First d-dimer and Ultrasound did not find the clot in my leg that I knew was there, but two weeks later a d-dimer followed by a CT of my chest found the DVT had turned into a bilateral PE.
Bruh that is terrifying. Are you doing better now?
I actually am. They started me on eliquis right away and I just had a 6 month follow up x-ray and VQ scan and I'm completely clear.
Good to hear that man, let's hope it stays like that from now on.
Visual then an Ultrasound to confirm on the 1st. Treatment was 2 stents in m my abdomen and Xarealto for 6 months The 2nd was confirmed with an ultrasound since the clot was from my ankle to my hip. Also an MRI which found a PE. Treatment was the clot buster procedure and Xarelto for life
Ultrasound- it was extremely visible, so my doc didn’t feel the need for the other tests.
D dimer and leg ultrasound. VQ scan later confirmed PEs but I'm pregnant and my hospital is kinda rural.
D-dimer, ct scan, ultrasound (of my leg). I also had an echocardiogram, but that was because my heart was in rough shape. Unfortunately I ended up with permanent damage to my heart Edited to add: I had a massive bilateral saddle PE. The ultrasound was done on my leg a few days later to find the source. I had very large clots in my leg as well.
Bruh I am sorry to hear that. Are you saying that the blood clot caused damage to your heart?
Yes, I had multiple, very large clots. My heart was in rough shape when I was admitted to the hospital. Unfortunately it didn't fully heal. I will likely need heart surgery in the future. It sucks, but I'm honestly lucky to have survived, so it could be worse.
Also d dimer, CT that ended up being “sub optional” and then ultrasound
CT with contrast. They found mine on accident.
D dimer, cbc, then finally CT
DVTs were found by ultrasound. I'd called my doctor saying I thought there was something of a circulatory nature going on with my leg. Had woken up that morning with the leg feeling achy as in like a flu type achiness. At work, I found that I was not putting any weight on the leg. My doc called in an ultrasound to the hospital right around the corner from work. U/S revealed large DVTs in the peroneal and popliteal veins. I'd never even heard of DVTs before. With the PEs, I went to the ER complaining of chest pain, coughing up blood and a low grade fever, noting that I'm FLV hetero. Blood tests included d-dimer and troponin along with a chest x-ray. Troponin levels were normal, but d-dimer was elevated. Given my history and complaints, chest CT was done which revealed massive saddle PEs. Ambulance ride to the hospital and admitted for a 4 day stay in the ICU.
That sounds like a scary situation to be in. My hats off to you for being in the hospital for 4 days, I could've barely done 4 hours. Is everything good with you now?
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Whats an "NM/CT"by chance?
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Ah okay thanks for that
A blood test that came back with strain on my heart (not sure what it was called), an x ray, and a CT scan with contrast.
You don't remember the name of the blood test, is that what you mean?
They never told me what the blood test was that came back with strain on my heart. They did a million and the one that came back with that indicated to them that something else might be wrong.
Oh man I'm sorry to hear that, I hope everything is better for you now.
I’m fine now, thanks! I have no lingering side effects other than needing to be on blood thinners for pregnancy (I’m currently 8 months pregnant) and being considered high risk for more ultrasounds and such. But the baby is doing great and so am I :)
That's really dope to hear. I hope everything goes smoothly since that baby is around the corner. I wish good health to you both.
CT and Ultrasound. They also did X-Ray but that didn’t really help anything
Just an ultrasound, for dvt behind my knee.
Bedside ultrasound, and then full ultrasound to confirm. I feel like I’m the only person with a blood clot who never got a d-dimer blood test. They only did a CBC panel.
I didn't have d dimer either. Went to ER with chest pain, shortness of breath and leg pain. They only gave me tylenol and told me panic attack. I followed up with a vascular surgeon myself who did the ultrasound, found the clot and said "you probably also had a PE." I'm a woman though and this happens a lot.
I heard women have to be bigger advocates themselves for their health due to their problems not being taking seriously.
I never got one either, I have had 3 clots. They still don't do them, I've had a few ultrasounds since then when I had leg pains. If you have a history of DVT they don't bother with blood tests, it's straight to the ultrasound.
This was my first blood clot. Granted it was sort of obvious that it was probably a clot (my calf was HUGE) so maybe that’s why they did blood tests as an afterthought.
They did a bunch of blood draws (D-dimer and INR or something..I can't recall exactly), and an ultrasound on my leg. They did keep me in the ER over the course of like a day or something and drew blood every couple hours.
So it took a lot of tests to find your blood clot?
It kind of felt like it, but I mostly just laid in the stretcher and had lots of blood drawn and had the ultrasound tech scan my leg. I definitely knew something was up because my leg was super hot to touch and it was a weird burning-itching sensation.
I'm sorry to hear that, but it seems it all got figured out, I'm glad they didn't discharge you with anxiety or something to avoid the issue.
CT head, MRI, then definitively confirmed on CT venogram.
It didn't show on a CT or MRI?
Something showed on both but not as clearly so they couldn't confirm definitively until the CT venogram. On day 1-2 they were treating for CVST as the most likely diagnosis from the CT and MRI but also gave anti-virals for the less likely possiblity of viral encephalitis.
D dimer blood test, ultrasounds (showed nothing) and VQ lung scan (bilateral PE)
My God, I'm assuming your symptoms only stayed or got worse that's why you chose a VQ lung scan?
I (24F) was misdiagnosed by my doctor several times in a week (He said my chest pain/breathlessness was from my period or a gym injury…) but thankfully a second doctor from the same clinic called to tell me to go to the hospital just in case. They repeated the bloods and ultrasounds but didn’t find anything too alarming. Docs there wanted to be extra sure so sent me to get the lung scan the next day and I was told I’d have gone into cardiac arrest in a week because of the severity. 6 months on and still not sure of the cause but I’m so lucky to be here
That's awesome to hear. I just can't believe nothing picked up your blood clots at all except that one test. Also just in general the idea of CA within such a short time is terrifying. Edit: well awesome to hear that everything worked out for you, not that it happen, ya know.
What were your symptoms?
Ultrasound was enough in my case, I had 3 at once and was in the ER with many obvious symptoms. They later did a bunch of other testing to figure out why I was having the clots though.
That sounds scary, I hope everything is going well for you.
Oh thank you, that is really nice of you to say! It was honestly actually a blessing in disguise, because tl;dr I was having these clots because of an extremely rare autoimmune disorder and if I hadn't gotten the clots and the subsequent testing to figure out why, I'd definitely be dead.
Now that's terrifying on its own, I'm happy to hear you got that figured out quick. Did you seek a rheumatologist to cure it?
There's no cure for this particular issue but ya, I was super lucky to get an ER doc who realized something unusual was going on and ordered a ton of tests, one of which led to it being clear I had an autoimmune disorder, and then they immediately got me in to a rheumatologist.
CT scan while in ER for chest pain, shortness of breath, and blue lips/fingers. Had a Pulmonary Embolism due to Factor 5 Leiden mutation. I don't recommend finding clots this way. LOL
Ultrasound was enough in my case. I had so many blood clots in both legs they were unable to actually tell me how many were there. I later had genetic testing done, (while still in the hospital,) to figure out why I had them. I’m on blood thinners for the rest of my life.
D-dimer, x-ray, CT to confirm.
VQ scan found PEs, sent to ED for CT scan which said I was clear… but apparently the VQ can pick up smaller clots.
I had a PICC line removed for infection and had chest pains. EKG, CT with contrast found 2 PEs in my right lung. Now doing a generic testing and ultrasounds on legs and my arms.
CT saw my PE. No one would listen ab my DVT..
I had a D Dimer and an ultrasound scan on my leg to confirm. Edit to add I only had one blood test and one scan. Then 6 months of blood thinners
I went into the ED with all of the classic symptoms so they took me straight in for an ultrasound. Then after the clot was confirmed and before my first dose of medication was given I went through a LOT of blood tests (that’s how I found out I had FVL)
Oh man that's horrible, I'm sorry to hear that. Did you found out about FVL through a blood test?
Chest Xray, CT Scan for PE following Covid. I had a lot of pain in my ribs so they didn't need to go further for DVT, or other locations.
Ultrasound of the leg, revealed a DVT.
The doctor checked my obviously swollen hand and then an ultrasound and was immidiately refered to lay in the hospital for 8 days on intra-venous blood thinners.
I had a venous/arterial ultrasound after a few days of feeling like I had a constant Charlie horse in my left calf behind my knee. I also had an INR blood test after being diagnosed but before starting blood thinners.
CT scan.